Abstract
AIM: To explore trajectories of understanding and managing persistent chemosensory dysfunction after COVID-19 in patients undergoing clinical treatment. DESIGN: A descriptive qualitative interview study with a realist approach. METHOD: Data were collected in Sweden, from August 2022 to March 2023 through semi-structured interviews with 30 patients undergoing treatment for long-lasting smell and taste dysfunction resulting from COVID-19. Thematic analysis was applied in a process that involved continuous discussions and refinement of codes into themes and subthemes. RESULTS: Three main themes were identified: (1) Understanding the sensory alterations, which includes subthemes of Searching for validation and Seeking remedies; (2) Practical coping strategies, encompassing Adapted eating and Managing olfactory training and (3) Navigating the emotional landscape, featuring Self-persuasion and suppression and The ambivalence of acceptance. These themes highlight the cyclic and fluid nature of coping with the dysfunction, reflecting a dynamic process of adaptation. Despite treatment options like olfactory training, participants frequently experienced frustration due to limited perceived improvement and the psychological toll of managing their condition. CONCLUSION: The study highlights the complex and personal nature of coping with long-term smell and taste dysfunction post-COVID-19. Coping strategies varied widely and evolved over time, reflecting a dynamic process of adaptation. The emotional and psychological impact was profound, underscoring the need for comprehensive treatment approaches that include both physiological and psychological support. There is a need for more effective interventions and support mechanisms to improve the quality of life for those affected by these persistent symptoms. IMPLICATIONS: This study contributes to the understanding of COVID-19's long-term effects on smell and taste, highlighting the need for ongoing support from health care, further research into effective interventions, and a comprehensive approach to care for individuals affected by these conditions. IMPACT: This study addresses trajectories and challenges of coping with persistent chemosensory dysfunction. Findings emphasise the complexity of managing persistent chemosensory dysfunction and the critical role of personalised care. The study contributes to knowledge for nurses in understanding patients with chemosensory dysfunction. REPORTING METHOD: This research adheres to the EQUATOR guidelines: Standards for reporting qualitative research (SRQR). PATIENT OR PUBLIC CONTRIBUTION: No patient or public contribution.