Representation is power: traditional, hybrid, and digital recruitment results from a non-randomized clinical trial engaging adolescents

代表性就是力量:一项针对青少年的非随机临床试验中传统、混合和数字招募的结果

阅读:2

Abstract

Clinical trials support the iterative advancement of modern medicine. However, challenges in achieving population-representativeness or participant sampling commensurate with the burden of disease can limit the generalizability and reproducibility of trial results. Here, we present the recruitment strategies and cohort profile of the Engaging Adolescents in Decisions about Return of Genomic Research Results non-randomized clinical trial (NCT0448106), where traditional, targeted hybrid, and digital recruitment methods were implemented with quota sampling to enroll diverse adolescents (ages 13-17) and young adults (ages 18-21). The largest proportion of participants enrolled through digital strategies (39.1%), followed by traditional (34.2%), and targeted hybrid strategies (23.2%). Despite lower enrollment, targeted hybrid recruitment, involving letters and text messages, had the largest proportion of participants from groups historically underrepresented in research (87.5%), compared to traditional (48.5%) and digital (32.3%) methods (p < 0.001). Our findings demonstrate a model for achieving both recruitment targets and inclusive trial participation to counteract overrepresentation of participants of European descent in clinical research.

特别声明

1、本页面内容包含部分的内容是基于公开信息的合理引用;引用内容仅为补充信息,不代表本站立场。

2、若认为本页面引用内容涉及侵权,请及时与本站联系,我们将第一时间处理。

3、其他媒体/个人如需使用本页面原创内容,需注明“来源:[生知库]”并获得授权;使用引用内容的,需自行联系原作者获得许可。

4、投稿及合作请联系:info@biocloudy.com。