Patients' Experiences and Unmet Needs in Atrial Fibrillation: Implications for Person-Centred Care

房颤患者的体验和未满足的需求:对以人为本护理的启示

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Abstract

BACKGROUND: Atrial fibrillation is a common cardiac arrhythmia that significantly impacts patients' daily lives. While clinical management is well established, and despite growing interest in patient-centred care, the perception and emotional response of patients with AF remain less explored. OBJECTIVE: This study aimed to explore the experiences and perceived needs of patients with atrial fibrillation. METHODS: A qualitative descriptive design was employed. Twenty adult patients diagnosed with AF and no cognitive impairment were recruited from a public hospital in northern Portugal. Semi-structured interviews were conducted, audio-recorded, transcribed verbatim and analysed using thematic content analysis supported by NVivo software. Themes were developed inductively and refined through iterative coding and discussion. RESULTS: Five main themes were identified: (1) Dealing with a New Normal; (2) Embracing the Illness Journey; (3) Walking the Illness Journey; (4) Unmet Healthcare Needs, and (5) Improving Supportive Services. CONCLUSION: Patients with atrial fibrillation face challenges that extend beyond symptom management. Findings underscore the importance of integrated, theory-informed, patient-centred approaches to support individuals living with atrial fibrillation across diverse contexts.

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