Abstract
BACKGROUND: Digital health technologies can potentially increase the efficiency and quality of pediatric palliative care (PPC), yet their use in home-based PPC remains limited. Limited digital health care literacy and inadequate training can reduce confidence and foster negative attitudes, whereas positive experiences and basic digital health care literacy may encourage adoption. OBJECTIVE: This study aims to explore the use of digital health technologies by Norwegian health care personnel in home-based PPC and examine the association between their digital health care literacy and their attitudes toward digital health. METHODS: A cross-sectional study was conducted from September 2023 to May 2024, with an online survey targeting health care personnel involved in home-based PPC through primary or specialist health care services. Data were collected using selected items from the Norwegian Healthcare Personnel Survey on eHealth 2022, the Digital Health Care Literacy Scale (DHLS), and the Information Technology Attitude Scales for Health (ITASH), alongside demographic characteristics. Higher DHLS scores indicate greater digital health care literacy, while higher ITASH scores reflect more positive attitudes toward digital health technologies. Pearson correlation, ANOVA, and multiple linear regression analyses were conducted to comprehensively explore the relationships and associations among the variables. RESULTS: Health care personnel (n=148) from diverse health care services responded to the survey. Half of the respondents (72/144, 50%) had experience with real-time video consultation, while phone calls were the primary communication method (138/145, 95.2%). Additionally, 55.6% (79/142) of the respondents had limited or minimal access to electronic health records from other health care services. Health care personnel perceived digital health technologies for remote PPC as a supplement (126/135, 93.3%) rather than a replacement for in-person care. Mean digital health care literacy was 18.29 (SD 3.8) on a scale from 0 to 23. On a scale from 1 to 4, the highest recorded scores pertained to attitudes toward digital health technologies in supporting care (mean 3.17, SD 0.39) and the perceived need for training (mean 3.16, SD 0.43). A statistically significant association was found between the respondents' level of digital health care literacy and their attitudes toward digital health technologies in supporting care (β=0.030, 95% CI 0.014-0.047; P<.001). CONCLUSIONS: This study examined the use of digital health technologies by Norwegian health care personnel in home-based PPC, their digital health care literacy, and attitudes toward digital health. Despite positive attitudes and high digital health care literacy, use of digital health technologies was limited, suggesting that inadequate digital health solutions may hinder effective implementation. Addressing these barriers is crucial to enhancing the implementation of digital health in home-based PPC. Future research should focus on integrating digital health technologies into existing infrastructure and workflows while exploring their impact on personalized care to ensure high-quality home-based PPC.