Investigation on quality of life of parents of children with cerebral palsy and its influencing factors: A cross-sectional study

脑瘫患儿父母生活质量及其影响因素调查:一项横断面研究

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Abstract

This study investigates the level of quality of life among parents of children with cerebral palsy (CP) and provides a reference for improving intervention measures to enhance their quality of life. A convenience sample of 160 parents of children with CP were selected, and a questionnaire survey was conducted using The World Health Organization Quality of Life-Based Rating Scale, the psychological stress questionnaire for parents of children with disabilities (OMS-PDC), the Simple Coping Styles Questionnaire and the Perceived Social Support Scale. The quality of life score for parents of children with CP was (61.53 ± 11.73) points. The quality of life of parents was positively correlated with coping style and social support (all P < .001). The relationship with the child, average monthly family income, cumulative rehabilitation time, psychological stress, coping style, and social support were important factors affecting the quality of life of parents of children with CP, explaining 37.70% of the variability in quality of life. The quality of life of parents of children with CP is at a moderate level and is influenced by various factors such as the relationship with the child, average monthly family income, cumulative rehabilitation time, psychological stress, coping style, and social support. In clinical work, attention should be paid to the quality of life and physical and mental health of parents of children with CP in order to promote their rehabilitation.

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