[Fibromyalgia patients' perceptions of the impact of the disease in the workplace]

[纤维肌痛患者对疾病对工作场所影响的看法]

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Abstract

OBJECTIVE: To explore the perceptions of patients with fibromyalgia (FM) on the problems they experience in the workplace, to discuss how they face and adapt to the limitations imposed by the symptoms of this disease. DESIGN: An exploratory qualitative study conducted in 2009. LOCATION: Associations of patients of FM from Valencia (Spain). PARTICIPANTS: Sixteen patients (13 women and 3 men) diagnosed with FM by a rheumatologist, of different ages and occupations, selected from key informants and the snowball technique. METHOD: Pragmatic sample. Semi-structured interviews until saturation of information when no new information emerged. Qualitative content analysis using the software Atlas.ti-5, to generate and assign codes, forming categories and identifying a latent theme. RESULTS: We identified four categories: difficulties in meeting the work demands, need for social support in the workplace, strategies adopted to continue working, and resistance to leave the employment. A theme which crosscut these categories emerged: FM patientś motivation to continue in the labour market. CONCLUSIONS: Addressing the specific needs of patients it is essential in order to helping them to stay in the labour market, according to their capabilities. Awareness programs about the consequences of FM in the workplace are needed to achieve the collaboration of managers, entrepreneurs, occupational health professionals and primary care physicians and nurses.

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