The Development of a Clinical/Nation-Wide Hemophilia Data Base

建立临床/全国性血友病数据库

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Abstract

This paper presents the results of the computer implementation of a hemophilia data base. The data base has been developed over a number of phases. The first phases implemented a nation-wide Canadian registry of hemophiliacs. The phases reported here involved the computerization of a clinical data base shared between two regional hemophilia clinics. The project has clearly identified the feasibility and benefits of such a computerized data base for clinical treatment/research purposes. Plans include the implementation of the clinical portion of the data base on a nation-wide basis.

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