Aging in rural areas: balancing land, care, and connection of family caregivers of persons with dementia: a qualitative analysis

农村老龄化:平衡土地、照护和痴呆症患者家庭照护者的联系:一项定性分析

阅读:1

Abstract

BACKGROUND AND OBJECTIVES: Caregiving for people with dementia is especially challenging in rural areas of the United States, where services and support are often limited. This study explores how contextual factors-environmental conditions, resource availability, and family and social dynamics-intersect to shape experiences of rural family caregivers. RESEARCH DESIGN AND METHODS: This secondary analysis uses qualitative data from a nationwide randomized controlled trial of an online workshop for rural family caregivers. Semi-structured interviews with 55 participants explored how living in a rural, farming, or small town area influenced their caregiving experiences. Narrative analyses were conducted to identify themes. RESULTS: Three themes emerged: navigating rural tranquility and environmental challenges, caregiving in resource-limited settings, and variable support from family, friends, and neighbors. Caregivers described the dual impact of their environment-while rural tranquility and perceived safety were valued, they were offset by the need for constant vigilance and the physical demands of land maintenance when caring for a person with dementia. Caregivers also reported challenges accessing specialized care, citing limited availability and inadequate dementia-specific communication from providers that impeded access to information and resources. As a result, many managed care independently to fill critical gaps. While family support was essential for some, it was not always available. Despite familiar surroundings, many caregivers felt isolated, as friends or neighbors remained distant observers rather than hands-on helpers. DISCUSSION AND IMPLICATIONS: These findings highlight the complex realities of rural dementia caregiving, where environmental conditions, resource limitations, and social factors intersect to shape caregiver experiences. Aging in rural areas offers comfort but burdens caregivers significantly. Addressing gaps in service accessibility, improving provider communication, and strengthening informal support networks are critical steps toward reducing caregiver burden and enhancing well-being for caregivers and people with dementia.

特别声明

1、本页面内容包含部分的内容是基于公开信息的合理引用;引用内容仅为补充信息,不代表本站立场。

2、若认为本页面引用内容涉及侵权,请及时与本站联系,我们将第一时间处理。

3、其他媒体/个人如需使用本页面原创内容,需注明“来源:[生知库]”并获得授权;使用引用内容的,需自行联系原作者获得许可。

4、投稿及合作请联系:info@biocloudy.com。