Genetic counseling and presenilin-1 Alzheimer's disease: "Research Family" members share some thoughts

遗传咨询与早老素-1型阿尔茨海默病:“研究家族”成员分享一些想法

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Abstract

Genetic counseling is a 2-way street between counselor and the counseled. In this article, both share experiences gained through more than 25 years of searching for the gene, finding the presenilin-1 Alzheimer's disease gene, and waiting for a cure. "Research Families" made research models a reality. Few family members requested presymptomatic testing.

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