Mothers' Experiences Raising Children With Complex Care Needs in Rural Settings: A Qualitative Study

母亲在农村地区养育有复杂护理需求儿童的经历:一项定性研究

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Abstract

INTRODUCTION: Having a child with complex care needs (CCNs) can significantly impact families' daily life structure. High caregiving responsibilities perceived by mothers and limited access to services-especially in rural settings-can affect their mental health and lead to caregiver burnout. OBJECTIVES: This study aimed to explore the challenges faced by mothers of children with CCNs living in a rural setting. Methods: Eight mothers, recruited through a Community Social Pediatrics Centre in New Brunswick (CA), were individually interviewed between July 2020 and January 2021. Interviews were transcribed and analyzed using a thematic analysis method. RESULTS: Results highlight challenges experienced by mothers in accessing care and formal resources for their children. Both the lack of support and challenges faced by the child increased mothers' burden. DISCUSSION: Future research and intervention are warranted to better identify and meet the needs of mothers having a child with CCNs and living in rural settings.

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