The Atopic Dermatitis Patient Journey: From Awareness to Advanced Care

特应性皮炎患者的就医历程:从认知到高级护理

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Abstract

Atopic dermatitis (AD) is a chronic, relapsing inflammatory skin disease that significantly impacts the physical, psychological, and social well-being of patients. While clinical guidelines offer structured treatment pathways, real-world patient experiences often differ from clinical expectations due to delayed diagnosis, misinformation, inconsistent care, and emotional distress. This narrative review explores the full spectrum of the AD patient journey, from pre-diagnosis awareness to maintenance therapy and advanced treatment access, highlighting the barriers patients face in navigating care. These include medical, psychological, financial, and systemic obstacles that impair treatment adherence and reduce quality of life (QoL). The importance of early recognition by primary care providers, timely referrals to dermatologists, and patient-centered communication is emphasized. Advancements in topical, systemic, and biologic therapies have transformed the therapeutic landscape; however, fears around steroid use, cost-related limitations, and inadequate care coordination persist. A shift toward proactive management, integration of teledermatology, and patient education programs can bridge the gap between clinical recommendations and real-world outcomes. Understanding the patient journey is essential for developing more inclusive and effective care models that improve long-term disease control and patient QoL.

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