'It's Really Who They Are and What They Want': Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities

“这才是他们真正的自我和他们想要的”:员工对支持智力障碍自闭症成年人自主性的看法

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Abstract

BACKGROUND: Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy. MATERIALS AND METHODS: This qualitative study used a community-based participatory approach. Nine staff who worked within a post-secondary transition programme to support Autistic young adults with intellectual disabilities were interviewed. Data were analysed using reflexive thematic analysis. RESULTS: The quality and depth of relationships between staff and Autistic adults with intellectual disabilities, and a safe, supportive environment, were critical to supporting autonomy. Staff also identified several skill areas that would benefit program participants to exert their autonomy, including self-advocacy, interoceptive awareness, working with others, and understanding choices. CONCLUSIONS: This crucial information for supporting autonomy for Autistic adults with intellectual disabilities provides a basis for enacting programme change to promote self-determination. Recommendations for staff and programme development are provided.

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