Abstract
BACKGROUND: Stroke remains a significant global health concern, including in Thailand, with high mortality rates. Despite investments in stroke prevention, inadequate support exists for severely disabled stroke survivors (SSs) and their caregivers, particularly in enhancing their quality of life. PURPOSE: This research aimed to explore the experiences of SSs receiving home care, develop and implement a care model to enhance community volunteer caregivers' (CVCGs) capabilities, and evaluate the outcomes of this model for bedridden stroke survivors in Northeastern Thailand. METHODS: A research and development study was conducted in low-income, semi-urban communities in Northeastern Thailand, comprising three phases: 1) situation analysis, 2) development of a community care model, and 3) implementation and evaluation. Forty participants were purposively selected, including SSs, family caregivers (FCGs), CVCGs, and relevant community leaders (RCLs). Data collection involved focus group discussions, in-depth interviews, and participant observations, with content analysis used for data interpretation. RESULTS: Key themes emerged: SSs experienced "Feeling Isolation & Powerlessness" and "Hopelessness & Being Burden to Family", FCGs expressed "Sorrow & Gratitude", and CVCGs identified "Inadequate Capacity & Need for Training". These findings underscored the lack of sufficient support for all groups. The study proposed the KKU Bedridden Care Model, derived from the KKU Family Health Nursing Model, to strengthen families' and communities' caregiving capacities. After five months, the themes "Heartwarming" (SSs, FCGs) and "Being Proud of Capability" (CVCGs) highlighted improved outcomes. CONCLUSION: The KKU Bedridden Care Model shows promise for long-term care in resource-limited settings. Its adoption by local administrative organizations could provide ongoing support, offering a scalable solution for improving the care of bedridden individuals both in Thailand and globally.