Putting the broken pieces of life together, Baloch family caregivers' confrontation with schizophrenia: a phenomenological study

将破碎的生活碎片重新拼凑起来:俾路支家庭照护者与精神分裂症的对抗:一项现象学研究

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Abstract

BACKGROUND: Long-term care of patients with schizophrenia, which creates a burden of care, leads to disruption in interactions, social and personal relationships, changes in lifestyle, and shifts in the roles of family members. This study aimed to explore the lived experiences of family caregivers who are caring for a family member with schizophrenia within the Baloch ethnicity. METHODS: This is a qualitative study, using a descriptive phenomenological approach. A total of fifteen family caregivers of patients with schizophrenia participated in the study. Data were collected by a semi-structured interview. RESULTS: Twenty-one categories, seven sub-themes and one theme were extracted. "Putting the broken pieces of life together" was the main theme with sub-themes of "Ignorance confrontation", "Schizophrenia acceptance process", "Restoring a chaotic context with human and non-human approaches", "Support seeking", "Escaping from stigma", "Roles restoring", and "Lifelong caring". CONCLUSIONS: For a family with a member with schizophrenia, restoring family life is a top priority. However, schizophrenia is so debilitating and destructive that it threatens not only the peace of the family but also the survival of the family, and it requires constant effort and complete support to restore and maintain life.

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