A user-driven consent platform for health data sharing in digital health applications

一个基于用户驱动的健康数据共享同意平台,用于数字健康应用程序

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Abstract

Wearable and health app data hold significant potential for healthcare and research, yet fragmented consent mechanisms create challenges for ethical, transparent, and user-controlled data sharing. We describe a centralised consent management system with a structured approach to standardising health data sharing, ensuring regulatory compliance and improving user autonomy. We describe implementation requirements of the system, emphasising regulatory alignment, involvement of app developers, user empowerment, and governance by neutral public bodies.

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