Abstract
PURPOSE: The purpose of this study was to evaluate the face and content validity of the 10-item Communicative Participation Item Bank (CPIB) General Short Form for persons with primary progressive aphasia (PPA) and their communication partners. METHOD: Nine dyads, each consisting of a person with PPA and their communication partner, completed semistructured cognitive interviews that assessed the instructions, format, response options, item comprehension, and relevance to their experiences with PPA. Interviews were conducted via videoconference. Closed-ended responses were quantified, and open-ended responses were analyzed via thematic analysis. Summaries were generated for each item, including recommended changes. RESULTS: Measure instructions and format were clear to all participants (N = 18, 100%). Participants demonstrated good comprehension of individual CPIB items, with a majority finding the items clear and relevant to their experiences. Most (n = 14, 78%) participants suggested adding a fifth response option (i.e., "somewhat") to better capture their range of communication experiences. Talking on the phone was the most reported missing communicative participation situation (n = 12, 67%), followed by videoconference (n = 3, 17%) and e-mail/texting (n = 3, 17%). CONCLUSIONS: Initial data support use of the CPIB with persons with PPA and their communication partners for capturing clinically meaningful communication function. Potential modifications for sharpening the relevance, applicability, and sensitivity to longitudinal measurement of change include increasing the number of response levels, adding an item on communicative participation via phone/videochat, and using proctored administration for persons with PPA. SUPPLEMENTAL MATERIAL: https://doi.org/10.23641/asha.30299941.