Meta-synthesis of qualitative research on family caregiving experiences for individuals with cognitive impairment: a systematic review

对认知障碍患者家庭照护经历的定性研究进行元综合分析:一项系统综述

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Abstract

OBJECTIVE: Qualitative studies on the caregiving experiences of families with individuals who have cognitive impairments are diverse; however, individual studies often fail to capture the multifaceted nature of caregivers' experiences. This research employed meta-synthesis to consolidate relevant findings, aiming to generate more comprehensive conclusions that can inform the development of caregiving intervention programs through systematic evidence synthesis. METHODS: We conducted a computerized systematic search of the PubMed, Cochrane Library, Web of Science, ProQuest, Embase, and Scopus databases to identify qualitative studies on the caregiving experiences of family caregivers of patients with cognitive impairment, covering the period from database inception to January 2025. Study quality was assessed using the Joanna Briggs Institute Center for Evidence-Based Health Care Quality Assessment Criteria (2016). The pooled meta-integration approach was employed to reanalyze, interpret, and synthesize qualitative findings, creating new categories through systematic reclassification and aggregation. RESULTS: A total of 15 studies met the inclusion criteria, yielding 74 distinct findings. These findings were consolidated into 15 categories representing four synthesized outcomes: (1) insufficient understanding among patients and caregivers regarding dementia etiology and symptomatology, (2) negative caregiving experiences, (3) relational challenges within familial and social networks, and (4) adaptive modifications in coping strategies for dementia. CONCLUSION: Family caregivers face multifaceted challenges in managing individuals with cognitive impairment; however, psychosocial support from familial, social, and societal networks facilitates positive adaptation. National governments and healthcare systems should prioritize service improvements that address the identified needs of both patients and caregivers through enhanced health service provision and targeted policy interventions. SYSTEMATIC REVIEW REGISTRATION: DOI: 10.17605/OSF.IO/3CZ26.

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