Parental Quality of Life in Childhood Cancer: Social Support as a Predictor and the Limited Association of Father Involvement

儿童癌症患儿父母生活质量:社会支持作为预测因素及父亲参与程度的有限关联

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Abstract

BACKGROUND: Parents caring for a child with cancer face substantial burdens that can diminish parental quality of life (QoL). Social support is often protective, yet the independent contribution of father involvement remains uncertain, particularly in Jordan. This study evaluated how perceived social support and father involvement relate to parental QoL. METHODS: In a cross-sectional study, 547 parents of children receiving cancer care at any setting for cancer in Jordan completed validated measures of parental QoL [SF-36], perceived social support, and father involvement [IFI]. Data were collected between March 2022 and March 2023. RESULTS: Mean QoL (SF-36 total) was 63.36 (SD = 6.48), indicating a moderate level on the 0-100 scale. Family/social support averaged 11.5 (SD = 4.9); endorsement of moral support (77%) and advice availability (72%) was common. Family/social support was positively associated with QoL (r =0.152, p =0.01; small effect). Father involvement showed no association with QoL (r =0.031, p =0.452). The overall regression model was significant (F = 18.3, p =0.01). Independent predictors of higher QoL were higher monthly income (B = 4.417, p <0.001), marital status (being single vs married associated with lower QoL; B = -6.325, p =0.002), place of residence (urban vs village associated with lower QoL; B = -3.387, p =0.004), and health insurance (B = 2.594, p =0.037). CONCLUSIONS AND IMPLICATIONS: In Jordan, perceived social support was a significant predictor of better QoL, whereas father involvement was not independently associated. Strengthening accessible, multi-source social support should be prioritized in caregiver interventions. Routine screening for social support in pediatric oncology and embedding support navigation, peer groups, and linkage to community resources may yield greater QoL gains than interventions focused primarily on increasing father involvement.

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