Emotional response to amyloid beta status disclosure among research participants at high dementia risk

高痴呆风险研究参与者对淀粉样蛋白β状态披露的情绪反应

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Abstract

INTRODUCTION: Amyloid beta (Aβ) can be detected in vivo years before Alzheimer's disease (AD) symptom onset and, according to recent criteria, is sufficient for a biological diagnosis. This study evaluates emotional responses to Aβ status disclosure in cognitively normal individuals. METHODS: Questionnaires were given before and 6 months after Aβ positron emission tomography results disclosure to assess anxiety and depression related to the possibility of an elevated result, subjective memory complaints, and motivation for risk-reduction behavior. RESULTS: One hundred ninety-nine cognitively normal adults were included. Non-elevated Aβ status disclosure was associated with reductions in all emotional parameters compared to baseline (p < 0.001). Elevated Aβ disclosure was associated with no changes in depression or memory complaints and a modest decrease in anxiety and motivation to change lifestyle (p < 0.048). DISCUSSION: No negative psychological effects were observed after Aβ status disclosure. Decreased motivation for lifestyle changes was seen after disclosure of both elevated and non-elevated amyloid status and should be targeted. HIGHLIGHTS: No negative psychological effects were observed after amyloid beta (Aβ) status disclosure. Motivation for lifestyle changes decreased after Aβ disclosure. Lower education may predict "unfavorable" response to non-elevated Aβ disclosure. Results support personalized communication strategies for Aβ disclosure.

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