Abstract
This investigation aims to present a network of events in which congenital Zika syndrome (CZS) was woven. The study closely followed the care needs of the families, the fears, the biomedical uncertainties, the difficulties in understanding, the challenges outlined at the moment in which difficult decisions were made and the entire flow of events that show the reality of the disease. The methodological orientation was based on the assumption that CZS emerged as it was manipulated in different practices in various spaces as a reference. By conceiving the processes of health and disease in this way, this study was inspired by the work of ethnographer Annemarie Mol. It is, therefore, a praxiography, understood as a research method, which does not focus on the investigation of meanings regarding the disease, but on the practices in which it is acted out. The rise of the disease was not only the result of medical activity, but the care practices of the families, their experiences, perceptions, discoveries and understandings about the disease also contributed to the production of what we know today as CZS. In this investigation, we sought to show how CZS appeared as a result of the actions performed by a variety of agents, causing different ways of reading the body and dealing with the disease to coexist incorporated into the various activities.