Abstract
BACKGROUND: Indigenous populations experience a higher prevalence of dementia compared to non-Indigenous populations. Brain Health PRO is a web-based educational program designed to increase knowledge around dementia risk factors and help create lifestyle changes. The purpose of this study is to understand whether Brain Health PRO is relevant to Métis communities in Alberta, Canada. METHODS: Métis participants were recruited across Alberta and interviews were completed using the Métis visiting methodology (Keeoukaywin). Data were co-analysed using Indigenous approaches to reflexive thematic analysis. RESULTS: Sixty-three interviews with 20 participants were completed between April and November 2024. The analysis generated two main themes which suggest the overall design and delivery of Brain Health PRO are not culturally relevant for Métis people in Alberta. The first theme, "Promoting Métis knowledge systems" was demonstrated through discussions of the seven components of Brain Health PRO (physical health, cognitive engagement, nutrition, sleep, social and psychological health, vascular health, and vision and hearing), and how these components excluded traditional Métis knowledge. The second theme, "Holistic approaches to risk reduction" described the how Métis knowledge could influence the way each component is presented and understood together in a Métis worldview. The subthemes were: importance of interaction and balance of multiple components; benefits of in-person program delivery; brain health promotion across the lifespan; accessing resources; and the legacy of colonization. DISCUSSION: Though the seven components of Brain Health PRO may be useful for Métis people, the content and delivery of these components lacked Métis knowledge and worldviews. In-person engagement with Métis communities is a crucial next step to co-develop resources that are culturally appropriate.