A longitudinal, multicentre, cohort study of community rehabilitation service delivery in long-term neurological conditions

一项关于长期神经系统疾病社区康复服务提供的纵向、多中心、队列研究

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作者:Richard J Siegert, Diana M Jackson, E Diane Playford, Simon Fleminger, Lynne Turner-Stokes

Conclusions

Registration is acceptable to most patients, but questionnaires/telephone interviews may not be the most efficient way to reach them. When community resources are limited, service provision tends to be focused on the most dependent patients. Registration: The study was registered with the NIHR Comprehensive Local Research Network: ID number 7503.

Results

n=322 (75%) expressed willingness to be registered, but in practice less than half responded to questionnaires at 6 and 12 months (49% and 44%, respectively), despite extensive efforts to contact them, with no significant differences between responders and non-responders. Significant unmet needs were identified within the first year following discharge, particularly in rehabilitation, social work support and provision of specialist equipment. Dependency for basic care and motor and cognitive impairment predicted services received, together accounting for 40% of the variance. Contra to expectation, patients whose rehabilitation needs were met were more dependent and less well integrated at 12 months post discharge than those with unmet needs. Conclusions: Registration is acceptable to most patients, but questionnaires/telephone interviews may not be the most efficient way to reach them. When community resources are limited, service provision tends to be focused on the most dependent patients. Registration: The study was registered with the NIHR Comprehensive Local Research Network: ID number 7503.

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