日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Assessing Patient-Reported Outcomes in Acute Attacks of Hereditary Angioedema: Insights from a Mixed Methods Study of Participants Receiving Standard-of-Care Treatments in a Real-World Setting

评估遗传性血管性水肿急性发作期患者报告结局:一项在真实世界环境中接受标准治疗的参与者混合方法研究的启示

Mendivil, Joan; Zhu, Li; Bonner, Nicola; Gargon, Elizabeth; Jouvin, Marie-Helene; Abetz-Webb, Linda; Fairbanks, Hannah; Sims, Joel; Middlehurst, Jessica; Cronin, Patrick; Chen, Maggie; Cohn, Danny M; Lu, Peng; Riedl, Marc A

Incorporating Patient Perspectives into a Composite Score for Measuring Disease Progression in Spinocerebellar Ataxia (SCA)

将患者视角纳入综合评分以衡量脊髓小脑性共济失调(SCA)的疾病进展

Potashman, Michele H; Rogula, Basia M; Powell, Lauren C; Korol, Ellen E; Dickson, Sam P; Hendrix, Suzanne; Heinrich, Maggie; Rudell, Katja; Abetz-Webb, Linda; Beiner, Melissa W; Coric, Vlad; Rosenthal, Liana S; Perlman, Susan L; Schmahmann, Jeremy D; L'Italien, Gil

Content Validity of the Friedreich Ataxia Rating Scale in Patients with Spinocerebellar Ataxia

Friedreich共济失调评定量表在脊髓小脑性共济失调患者中的内容效度

Potashman, Michele; Rudell, Katja; Suminski, Naomi; Doma, Rinchen; Heinrich, Maggie; Abetz-Webb, Linda; Beiner, Melissa Wolfe; Coric, Vlad; Rosenthal, Liana S; Kuo, Sheng-Han; Zesiewicz, Theresa; Fife, Terry D; van de Warrenburg, Bart; Ristori, Giovanni; Synofzik, Matthis; Subramony, Sub; Perlman, Susan; Schmahmann, Jeremy D; L'Italien, Gil

Content Validity of the Spinocerebellar Ataxia Composite Score as a Measure of Disease Progression in Patients with Spinocerebellar Ataxia

脊髓小脑性共济失调综合评分作为脊髓小脑性共济失调患者疾病进展指标的内容效度

Potashman, Michele; Heinrich, Maggie; Rudell, Katja; Abetz-Webb, Linda; Suminski, Naomi; Doma, Rinchen; Jarodia, Kavita; Jain, Mahak; Buckley, Chris; Wolfe-Beiner, Melissa; Coric, Vlad; Perlman, Susan; Rosenthal, Liana; Schmahmann, Jeremy; L'Italien, Gilbert

International Expert Consensus on Relevant Health and Functioning Concepts to Assess in Users of Tobacco and Nicotine Products: Delphi Study

关于评估烟草和尼古丁产品使用者相关健康和功能概念的国际专家共识:德尔菲研究

Law, Vivienne; Afolalu, Esther F; Abetz-Webb, Linda; Wemyss, Lee Andrew; Turner, Andrew; Chrea, Christelle

Development and initial validation of a new self-report measure to assess perceived dependence on tobacco and nicotine products

开发并初步验证一种新的自评量表,用于评估对烟草和尼古丁产品的依赖程度

Afolalu, Esther F; Salzberger, Thomas; Abetz-Webb, Linda; Cano, Stefan; Weitkunat, Rolf; Rose, Jed E; Chrea, Christelle

Content Validity of the Modified Functional Scale for the Assessment and Rating of Ataxia (f-SARA) Instrument in Spinocerebellar Ataxia

改良版共济失调功能评估和评级量表(f-SARA)在脊髓小脑性共济失调中的内容效度

Potashman, Michele; Rudell, Katja; Pavisic, Ivanna; Suminski, Naomi; Doma, Rinchen; Heinrich, Maggie; Abetz-Webb, Linda; Beiner, Melissa Wolfe; Kuo, Sheng-Han; Rosenthal, Liana S; Zesiwicz, Theresa; Fife, Terry D; van de Warrenburg, Bart P; Ristori, Giovanni; Synofzik, Matthis; Perlman, Susan; Schmahmann, Jeremy D; L'Italien, Gilbert

Development and testing of an alternative responder definition for EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI)

EULAR干燥综合征患者报告指数(ESSPRI)替代应答者定义的开发和测试

Wratten, Samantha; Abetz-Webb, Linda; Arenson, Ethan; Griffiths, Pip; Bowman, Simon; Hueber, Wolfgang; Ndife, Briana; Kuessner, Daniel; Goswami, Pushpendra

Content validation of a caregiver diary to monitor severity and recovery of pediatric patients with respiratory syncytial virus infection

对照护者日记进行内容验证,以监测呼吸道合胞病毒感染患儿的严重程度和康复情况

Tatlock, Sophi; Bentley, Sarah; Arbuckle, Rob; Abetz-Webb, Linda; Scott, Jane

Developing fit-for-purpose self-report instruments for assessing consumer responses to tobacco and nicotine products: the ABOUT™ Toolbox initiative

开发适用于评估消费者对烟草和尼古丁产品反应的自评工具:ABOUT™ 工具箱计划

Chrea, Christelle; Acquadro, Catherine; Afolalu, Esther F; Spies, Erica; Salzberger, Thomas; Abetz-Webb, Linda; Cano, Stefan; Arnould, Benoit; Mainy, Nelly; Rose, Jed; Weitkunat, Rolf