日期 影响因子
日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:
–

'High hopes for treatment': Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases

“对治疗寄予厚望”：澳大利亚利益相关者对罕见神经系统疾病先进神经疗法临床转化的看法

期刊:Health Expectations
影响因子:3.2
doi:10.1111/hex.14063
Nguyen, Christina Q; Kariyawasam, Didu S T; Ngai, Tsz Shun Jason; Nguyen, James; Alba-Concepcion, Kristine; Grattan, Sarah E; Palmer, Elizabeth E; Hetherington, Kate; Wakefield, Claire E; Dale, Russell C; Woolfenden, Sue; Mohammad, Shekeeb; Farrar, Michelle A
发表日期：2024
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The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review

罕见病患者组织参与罕见儿科神经系统疾病治疗创新：叙述性综述

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-022-02317-6
Nguyen, Christina Q; Alba-Concepcion, Kristine; Palmer, Elizabeth E; Scully, Jackie L; Millis, Nicole; Farrar, Michelle A
发表日期：2022
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'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics

“倡导团体是连接者”：罕见病患者组织领导者在先进神经治疗领域的经验和贡献

期刊:Health Expectations
影响因子:3.2
doi:10.1111/hex.13625
Nguyen, Christina Q; Kariyawasam, Didu; Alba-Concepcion, Kristine; Grattan, Sarah; Hetherington, Kate; Wakefield, Claire E; Woolfenden, Susan; Dale, Russell C; Palmer, Elizabeth E; Farrar, Michelle A
发表日期：2022
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