The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes
EuRRECa项目作为收集临床结果的罕见病登记处的数据访问和治理政策的模型
期刊:International Journal of Environmental Research and Public Health
影响因子:
doi:10.3390/ijerph17238743
Ali, Salma R; Bryce, Jillian; Tan, Li En; Hiort, Olaf; Pereira, Alberto M; van den Akker, Erica L T; Appelman-Dijkstra, Natasha M; Bertherat, Jerome; Cools, Martine; Dekkers, Olaf M; Kodra, Yllka; Persani, Luca; Smyth, Arelene; Smythe, Christopher; Taruscio, Domenica; Ahmed, S Faisal
