日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Exploring Quality of Life in Adults Living With Late-onset Pompe Disease: A Combined Quantitative and Qualitative Analysis of Patient Perceptions from Australia, France, Italy, and the Netherlands

探索晚发型庞贝病成年患者的生活质量:来自澳大利亚、法国、意大利和荷兰的患者感知定量与定性相结合的分析

Lumgair, Holly; Bashorum, Lisa; MacCulloch, Alasdair; Minas, Elizabeth; Timmins, George; Bratkovic, Drago; Perry, Richard; Stone, Medi; Blazos, Vasileios; Conti, Elisabetta; Saich, Raymond

Burden associated with Fabry disease and its treatment in 12-15 year olds: results from a European survey

12-15岁青少年法布里病及其治疗带来的负担:一项欧洲调查的结果

Bashorum, Lisa; McCaughey, Gerard; Evans, Owen; Humphries, Ashley C; Perry, Richard; MacCulloch, Alasdair