Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study
应对罕见病患者的社会心理脆弱性:一项欧洲专家共识研究的行动呼吁
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-025-04017-3
Smits, Rosanne M; Aerts, Aukje; Angelov, Teodor; Bentele, Marissa; de Blaauw, Ivo; Dellenmark-Blom, Michaela; Duijts, Saskia F A; Fjermestad, Krister; Franscini, Monica; Grano, Caterina; Hendriks, Sigrid; Inhestern, Laura; Kenny, Thomas; von der Lippe, Charlotte; Oomen, Loes; Rake, Jan Peter; Rietman, Andre B; van Rooij, Iris A L M; Verhaak, Chris M; Voet, Nicoline B M; Walton, Holly; van Zelst-Stams, Wendy; Kwakkenbos, Linda