日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Protocol for a two-arm parallel randomized controlled trial to evaluate patient and researcher co-presentation of research results: the Scleroderma Patient-centered Intervention Network-Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) trial

一项评估患者与研究者共同展示研究结果的双臂平行随机对照试验方案:硬皮病患者中心干预网络-患者与研究者共同参与研究结果共享(SPIN-PAIRS)试验

Nassar, Elsa-Lynn; Wurz, Amanda; Carrier, Marie-Eve; Golberg, Meira; Adams, Claire; Kwakkenbos, Linda; Hoa, Sabrina; Benedetti, Andrea; Thombs, Brett D

Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials

一系列基于队列的随机对照试验的主方案,旨在测试向研究参与者和其他具有相关生活经验的人员传达研究结果的工具:SPIN-CLEAR 试验

Thombs, Brett D; Adams, Claire; Nassar, Elsa-Lynn; Carrier, Marie-Eve; Golberg, Meira; Bharthi, Kanika; Wurz, Amanda; South, Annabelle; Kwakkenbos, Linda; Hoa, Sabrina; Rice, Danielle B; Guillot, Geneviève; Lawrie-Jones, Amanda; Sauvé, Maureen; Bartlett, Susan J; Fortune, Catherine; Gietzen, Amy; Gottesman, Karen; Hudson, Marie; Hummers, Laura K; Malcarne, Vanessa L; Mayes, Maureen D; Richard, Michelle; Stempel, James; Wojeck, Robyn K; Blagrave, Kathleen; Boruff, Jill T; Cook, Vanessa; Culos-Reed, Nicole; Fröbert, Ole; Gillies, Katie; Granikov, Vera; Hemkens, Lars G; Jimenez, Elizabeth Yakes; Kocher, Agnes; Leite, Catarina; Lim, Mathew A W T; Maltez, Nancy; Michalski, John; Mieszczak, Tracy; Ndosi, Mwidimi; Pope, Janet; Rannou, François; Rozee, Ken; Straus, Sharon E; Sydes, Matthew R; Thabane, Lehana; Varga, John; Yap, Tami; Zwarenstein, Merrick; Mouthon, Luc; Benedetti, Andrea

Factors associated with eHealth literacy among people with systemic sclerosis: A Scleroderma Patient-centred Intervention Network (SPIN) Cohort cross-sectional study

影响系统性硬化症患者电子健康素养的因素:一项以硬皮病患者为中心的干预网络(SPIN)队列横断面研究

Co, Natalie; Adams, Claire; Carrier, Marie-Eve; Golberg, Meira; Nassar, Elsa-Lynn; Kwakkenbos, Linda; Bartlett, Susan J; Fortuné, Catherine; Gietzen, Amy; Guillot, Geneviève; Lawrie-Jones, Amanda; Malcarne, Vanessa L; Mayes, Maureen D; Richard, Michelle; Mouthon, Luc; Benedetti, Andrea; Thombs, Brett D

Dissemination of study results to participants in mental health research: a meta-research review of studies published in high-impact psychiatry journals

向精神健康研究参与者传播研究结果:对发表在高影响力精神病学期刊上的研究进行荟萃分析

Pierson, Georgia; Nassar, Elsa-Lynn; Adams, Claire; Boruff, Jill; Nordlund, Julia; Hu, Sophie; Rice, Danielle B; Thombs-Vite, Mariana; Co, Natalie; Cook, Vanessa; Thombs, Brett D

Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership

系统性硬化症疼痛来源、模式和管理经验分析工具开发方案:硬皮病患者中心干预网络患者-研究者合作项目

Dal Santo, Tiffany; Golberg, Meira; Nassar, Elsa-Lynn; Carrier, Marie-Eve; Hu, Sophie; Kwakkenbos, Linda; Bartlett, Susan J; Fox, Rina S; Lee, Yvonne C; Varga, John; Benedetti, Andrea; Thombs, Brett D

Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study

COVID-19 期间系统性硬化症患者的工作变化和经济资源充足性:一项以硬皮病患者为中心的干预网络研究

Adams, Claire; Nassar, Elsa-Lynn; Carrier, Marie-Eve; Kwakkenbos, Linda; Henry, Richard S; Virgili-Gervais, Gabrielle; Hu, Sophie; Bartlett, Susan J; Fortuné, Catherine; Gietzen, Amy; Gottesman, Karen; Guillot, Geneviève; Hudson, Marie; Lawrie-Jones, Amanda; Lewis, Nancy; Malcarne, Vanessa; Mayes, Maureen D; Patten, Scott B; Richard, Michelle; Sauvé, Maureen; Varga, John; Welling, Joep; Wojeck, Robyn; Mouthon, Luc; Benedetti, Andrea; Thombs, Brett D

Engagement of people with lived experience in studies published in high-impact psychiatry journals: meta-research review

在发表于高影响力精神病学期刊的研究中,有亲身经历者的参与情况:荟萃研究综述

Adams, Claire; Nassar, Elsa-Lynn; Nordlund, Julia; Hu, Sophie; Rice, Danielle B; Cook, Vanessa; Boruff, Jill; Thombs, Brett D

Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews

研究人员和患者在患者会议上共同向系统性硬化症患者展示研究成果的经历:访谈内容分析

Wurz, Amanda; Ellis, Kelsey; Nordlund, Julia; Carrier, Marie-Eve; Cook, Vanessa; Gietzen, Amy; Adams, Claire; Nassar, Elsa-Lynn; Rice, Danielle B; Fortune, Catherine; Guillot, Genevieve; Mieszczak, Tracy; Richard, Michelle; Sauve, Maureen; Thombs, Brett D

Advancing scaling science in health and social care: a scoping review and appraisal of scaling frameworks

推进卫生和社会保健领域的规模化科学:规模化框架的范围界定审查和评估

Kothari, Anita; Graham, Ian D; Dougherty, Madeline; de Carvalho Corôa, Roberta; Mochcovitch, Diogo G V; Cassidy, Christine; Etherington, Amy; Ingabire, Marie-Gloriose; Gittings, Lesley; Gogovor, Amede; Légaré, France; Nassar, Elsa-Lynn; Tinuoye, Oluwabambi; Volmink, Heinrich Cyril; McLean, Robert K D

Transparency and completeness of reporting of depression screening tool accuracy studies: A meta-research review of adherence to the Standards for Reporting of Diagnostic Accuracy Studies statement

抑郁症筛查工具准确性研究报告的透明度和完整性:一项关于诊断准确性研究报告标准声明遵守情况的荟萃研究综述

Nassar, Elsa-Lynn; Levis, Brooke; Neyer, Marieke A; Rice, Danielle B; Booij, Linda; Benedetti, Andrea; Thombs, Brett D