A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study
在法国开展的关于囊性纤维化患者就医经历的问卷调查的概念框架:ExPaParM 合作研究
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-023-02640-6
Pougheon Bertrand, D; Fanchini, A; Lombrail, P; Rault, G; Chansard, A; Le Breton, N; Frenod, C; Milon, F; Royer, C Heymes; Segretain, D; Silber, M; Therouanne, S; Haesebaert, J; Llerena, C; Michel, P; Reynaud, Q