日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Navigating disclosure in new romantic partnerships as an adolescent or young adult with Li-Fraumeni syndrome

对于患有李-弗劳梅尼综合征的青少年或青年来说,如何在新的恋爱关系中坦白自己的病情?

Rising, Camella J; Huelsnitz, Chloe O; Forbes Shepherd, Rowan; Wilsnack, Catherine; Boyd, Patrick; Sleight, Alix G; Thompson, Ashley S; Hutson, Sadie P; Khincha, Payal P; Werner-Lin, Allison

Relating to the Body Under Chronic Cancer Threat: Implications for Psychosocial Health Among Adolescents and Young Adults with Cancer Predisposition Syndromes

慢性癌症威胁下的身体状况:对患有癌症易感综合征的青少年和青年心理健康的影响

Rising, Camella J; Forbes Shepherd, Rowan; Sleight, Alix G; Boyd, Patrick; Wilsnack, Catherine; Thompson, Ashley S; Huelsnitz, Chloe O; Hutson, Sadie P; Khincha, Payal P; Werner-Lin, Allison

Defining the complex needs of families with rare diseases-the example of telomere biology disorders

明确罕见病家庭的复杂需求——以端粒生物学疾病为例

Wilsnack, Catherine; Rising, Camella J; Pearce, Emily E; Forbes Shepherd, Rowan; Thompson, Ashley S; Majid, Alina; Werner-Lin, Allison; Savage, Sharon A; Hutson, Sadie P

Exploring Consumers' Motivations and Experiences of Engaging as Partners in Cancer Research

探索消费者参与癌症研究的动机和体验

Waterland, Jamie L; Beer, Cassandra; Forbes Shepherd, Rowan; Forrest, Laura E

Correction: Exploring Consumers' Motivations and Experiences of Engaging as Partners in Cancer Research

更正:探索消费者参与癌症研究的动机和体验

Waterland, Jamie L; Beer, Cassandra; Forbes Shepherd, Rowan; Forrest, Laura E

Patient communication and experiences in cancer clinical drug trials: a mixed-method study at a specialist clinical trials unit

癌症临床药物试验中的患者沟通和体验:一项在专业临床试验中心开展的混合方法研究

Forbes Shepherd, Rowan; Bradford, Ashleigh; Lieschke, Marian; Shackleton, Kylie; Hyatt, Amelia

Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body

李-弗劳梅尼综合征患者家庭所面临的身体风险:就像电流穿过我的身体

Werner-Lin, Allison; Forbes Shepherd, Rowan; Young, Jennifer L; Wilsnack, Catherine; Merrill, Shana L; Greene, Mark H; Khincha, Payal P

The Clinical and Psychosocial Outcomes for Women Who Received Unexpected Clinically Actionable Germline Information Identified through Research: An Exploratory Sequential Mixed-Methods Comparative Study

通过研究发现意外获得具有临床意义的生殖系信息的女性的临床和心理社会结局:一项探索性序贯混合方法比较研究

Forrest, Laura E; Forbes Shepherd, Rowan; Tutty, Erin; Pearce, Angela; Campbell, Ian; Devereux, Lisa; Trainer, Alison H; James, Paul A; Young, Mary-Anne

Evaluation of telephone genetic counselling to facilitate germline BRCA1/2 testing in women with high-grade serous ovarian cancer

评估电话遗传咨询在促进高级别浆液性卵巢癌女性进行生殖系BRCA1/2检测中的作用

Tutty, Erin; Petelin, Lara; McKinley, Joanne; Young, Mary-Anne; Meiser, Bettina; Rasmussen, Victoria M; Forbes Shepherd, Rowan; James, Paul A; Forrest, Laura E