Improving quality of life in rare diseases using disease-specific, multidisciplinary online interventions on the example of rare X-linked adrenoleukodystrophy: a randomized-controlled trial
利用疾病特异性多学科在线干预措施改善罕见病患者的生活质量——以罕见X连锁肾上腺脑白质营养不良为例：一项随机对照试验
期刊:Therapeutic Advances in Neurological Disorders
影响因子:4.1
doi:10.1177/17562864251376109
Schäfer, Lisa; Unterlauft, Astrid; Froebrich-Andreß, Brit; Wollny, Carolin; Rößler, Marie; Fischer, Ronja; Bähr, Carla; Lier, Julia; Wasmus, Daniel T; Bergner, Christa-Caroline; Köhler, Wolfgang
