日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Incidence and predictors of self-reported pulmonary exacerbations in primary ciliary dyskinesia: an international prospective cohort study

原发性纤毛运动障碍患者自述肺部急性加重的发生率和预测因素:一项国际前瞻性队列研究

Schreck, Leonie D; Goutaki, Myrofora; Pedersen, Eva S L; Copeland, Fiona; López Fernández, Trini; Lucas, Jane S; Kuehni, Claudia E

European Respiratory Society and American Thoracic Society guidelines for the diagnosis of primary ciliary dyskinesia

欧洲呼吸学会和美国胸科学会关于原发性纤毛运动障碍诊断的指南

Shoemark, Amelia; Goutaki, Myrofora; Kinghorn, BreAnna; Ardura-Garcia, Cristina; Baz-Redón, Noelia; Chilvers, Mark; Davis, Stephanie D; De Brandt, Jana; Dell, Sharon; Dhar, Raja; Dixon, Lucy; Ferkol, Thomas; Hogg, Claire; Legendre, Marie; Leigh, Margaret; Lucas, Jane S; Manion, Michele; Rumman, Nisreen; Toews, Ingrid; Labonte, Valerie; Wee, Wallace B; Kouis, Panayiotis; Horani, Amjad

French consensus statement on transition of adolescent and young adults with rare pulmonary disease from paediatric to adult care: a Delphi method study

法国关于青少年和青年罕见肺病患者从儿科过渡到成人护理的共识声明:一项德尔菲法研究

Peulier-Maitre, Elora; Goutaki, Myrofora; Nathan, Nadia; Patout, Maxime; Amedro, Pascal; Beltramo, Guillaume; Blonde, Aurore; Bonnet, Damien; Borie, Raphael; Bruneaux, Caroline; Carlier-Gonod, Adele; Coatrieux, Virginie; Cros, Pierrick; Douvry, Benoit; Dubus, Jean-Christophe; Dufeu, Nadine; Dulac, Yves; Ferry, Magali; Girardon, Dominique; Gonsseaume, Suzy; Grange, Anne-Cecile; Hameury, Frederic; Jaffre, Sandrine; Ladouceur, Magalie; Llerena, Catherine; Madaoui, Farida; Manali, Effrosyni; Mellerio, Helene; Mittaine, Marie; Morsa, Maxime; Papon, Jean-Francois; Schwartz, Elsa; Sitbon, Olivier; Szezepanski, Isabelle; Tessier, Manon; Werck-Gallois, Marie-Christine; Zemouri, Melisa; Hascoet, Sebastien; Remus, Natascha; Thouvenin, Guillaume

Patients' research priorities and participation in primary ciliary dyskinesia research

患者的研究重点及其在原发性纤毛运动障碍研究中的参与情况

Lam, Yin Ting; Behan, Laura; Dexter, Katie; Dixon, Lucy; Kuehni, Claudia E; Schreck, Leonie Daria; Lucas, Jane S; Goutaki, Myrofora

'Nobody Has Ever Spoken to Me About PCD and Fertility Issues': Fertility Experiences of People With Primary Ciliary Dyskinesia and Their Family Caregivers

“从来没有人跟我谈过原发性纤毛运动障碍和生育问题”:原发性纤毛运动障碍患者及其家庭照护者的生育经历

Schreck, Leonie D; Meyer, Sophie; Pedersen, Eva S L; Lam, Yin Ting; Silberschmidt, Hansruedi; Bellu, Sara; Zambrano, Sofía C; Kuehni, Claudia E; Goutaki, Myrofora

Recommendations for surveillance of pulmonary dysfunction among childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

儿童、青少年和青年癌症幸存者肺功能障碍监测建议:国际儿童癌症远期效应指南协调小组的报告

Otth, Maria; Kasteler, Rahel; Mulder, Renée L; Agrusa, Jennifer; Armenian, Saro H; Barnea, Dana; Bergeron, Anne; Bhatt, Neel S; Bourke, Stephen J; Constine, Louis S; Goutaki, Myrofora; Green, Daniel M; Hennewig, Ulrike; Houdouin, Veronique; Hudson, Melissa M; Kremer, Leontien; Latzin, Philipp; Ng, Antony; Oeffinger, Kevin C; Schindera, Christina; Skinner, Roderick; Sommer, Grit; Srinivasan, Saumini; Stokes, Dennis C; Versluys, Birgitta; Waespe, Nicolas; Weiner, Daniel J; Dietz, Andrew C; Kuehni, Claudia E

Questionnaire-assessed genotypes and associations with symptoms in primary ciliary dyskinesia

问卷调查评估的基因型及其与原发性纤毛运动障碍症状的关联

Pedersen, Eva S L; Goutaki, Myrofora; Schreck, Leonie D; Rindlisbacher, Bernhard; Dixon, Lucy; Lucas, Jane S; Kuehni, Claudia E

Definition of sinonasal and otological exacerbation in patients with primary ciliary dyskinesia: an expert consensus

原发性纤毛运动障碍患者鼻窦和耳科症状加重的定义:专家共识

Goutaki, Myrofora; Lam, Yin Ting; Anagiotos, Andreas; Armengot, Miguel; Burgess, Andrea; Campbell, Raewyn; Carlier, Mathilde; Caversaccio, Nathalie; Chadha, Neil K; Demir, Berat; Dheyauldeen, Sinan Ahmed D; Gunaydin, Onder; Harris, Amanda; Hayn, Isolde; Inal-Ince, Deniz; Levi, Eric; Fernandez, Trini Lopez; Lucas, Jane S; Maitre, Bernard; Poirrier, Anne-Lise M L; Schofield, Lynne; Takeuchi, Kazuhiko; van Gogh, Christine; Wolter, Nikolaus E; Papon, Jean-François

Priorities and barriers for research related to primary ciliary dyskinesia

原发性纤毛运动障碍相关研究的优先事项和障碍

Goutaki, Myrofora; Lam, Yin Ting; Rubbo, Bruna; Chalmers, James D; Kouis, Panayiotis; Marsh, Gemma; Papon, Jean-François; Raidt, Johanna; Robinson, Phil; Behan, Laura; Lucas, Jane S

A BEAT-PCD consensus statement: a core outcome set for pulmonary disease interventions in primary ciliary dyskinesia

BEAT-PCD共识声明:原发性纤毛运动障碍肺部疾病干预的核心结局指标集

Kos, Renate; Goutaki, Myrofora; Kobbernagel, Helene E; Rubbo, Bruna; Shoemark, Amelia; Aliberti, Stefano; Altenburg, Josje; Anagnostopoulou, Pinelopi; Athanazio, Rodrigo A; Beydon, Nicole; Dell, Sharon D; Emiralioglu, Nagehan; Ferkol, Thomas W; Loebinger, Michael R; Lorent, Natalie; Maître, Bernard; Marthin, June; Morgan, Lucy C; Nielsen, Kim G; Ringshausen, Felix C; Shteinberg, Michal; Tiddens, Harm A W M; Maitland-Van der Zee, Anke H; Chalmers, James D; Lucas, Jane S A; Haarman, Eric G