Consequences of rare diagnoses for education and daily life: development of an observation instrument
罕见疾病诊断对教育和日常生活的影响：观察工具的开发
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-022-02303-y
Jaeger, Gunilla; Röjvik, AnnCatrin; Hjelmquist, Erland; Hansla, André; Falkman, Kerstin W
