The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems
IDeaS计划:一项评估罕见病对患者和医疗保健系统影响的试点研究
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-021-02061-3
Tisdale, Ainslie; Cutillo, Christine M; Nathan, Ramaa; Russo, Pierantonio; Laraway, Bryan; Haendel, Melissa; Nowak, Douglas; Hasche, Cindy; Chan, Chun-Hung; Griese, Emily; Dawkins, Hugh; Shukla, Oodaye; Pearce, David A; Rutter, Joni L; Pariser, Anne R