日期 影响因子
日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:
–

Levels and correlates of pandemic anxiety in people living with rare diseases: a cross-sectional analysis using a structural equation model

罕见病患者疫情焦虑水平及其相关因素：基于结构方程模型的横断面分析

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-025-04152-x
Siebel, Hermann; Zybarth, David; Inhestern, Laura
发表日期：2026
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Adapting and Pilot-Testing a Training Program on Parental Cancer for Educational Professionals

针对教育工作者调整和试点开展关于父母癌症的培训项目

期刊:Cancer Medicine
影响因子:3.1
doi:10.1002/cam4.71511
Johannsen, Lene; Geertz, Wiebke; Inhestern, Laura
肿瘤
肿瘤免疫
发表日期：2026
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Impact of clinical symptoms on quality of life in adult hypophosphatasia: a monocentric study in northern Germany

临床症状对成人低磷酸酶症患者生活质量的影响：一项德国北部单中心研究

期刊:JBMR Plus
影响因子:2.4
doi:10.1093/jbmrpl/ziaf183
Krüger, Ron Niklas; von Brackel, Felix N; Vettorazzi, Eik; Inhestern, Laura; Oheim, Ralf; Amling, Michael; Barvencik, Florian
发表日期：2026
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Late Toxicity and Long-Term Quality of Life in Survivors of Cancer of the Major Salivary Glands More Than 5 Years After Diagnosis: A Multi-National Study

确诊5年以上主要唾液腺癌幸存者的远期毒性和长期生活质量：一项多国研究

期刊:Head and Neck-Journal for the Sciences and Specialties of the Head and Neck
影响因子:
doi:10.1002/hed.28263
Singer, Susanne; Amdal, Cecilie Delphin; Bjordal, Kristin; Herlofson, Bente Brokstad; Astrup, Guro Lindviksmoen; Boehm, Andreas; Wöhner, Ulrike; Hammerlid, Eva; Gama, Ricardo Ribeiro; Jacinto, Alexandre Arthur; Jansen, Femke; Verdonck-de Leeuw, Irma M; Dragan, Tatiana; Duprez, Fréderic; Kiyota, Naomi; Pinto, Monica; Krüger, Maximilian; Guntinas-Lichius, Orlando; Inhestern, Johanna; Tramacere, Francesco; Bonomo, Pierluigi; Fanetti, Giuseppe; Nuyts, Sandra; Plath, Michaela; Stempler, Noa; Westgaard, Kristine Løken; Taylor, Katherine J
肿瘤
毒理研究
肿瘤免疫
发表日期：2026
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Unmet supportive care needs among head and neck cancer survivors beyond 5 years after diagnosis: a multinational cohort study

头颈癌幸存者确诊5年后未满足的支持性护理需求：一项多国队列研究

期刊:Lancet Regional Health-Europe
影响因子:13
doi:10.1016/j.lanepe.2025.101495
Jansen, Femke; Eerenstein, Simone Ej; Taylor, Katherine J; Amdal, Cecilie D; Bjordal, Kristin; Astrup, Guro L; Herlofson, Bente B; Duprez, Fréderic; Gama, Ricardo R; Jacinto, Alexandre A; Hammerlid, Eva; Scricciolo, Melissa; Fanetti, Giuseppe; Guntinas-Lichius, Orlando; Inhestern, Johanna; Dragan, Tatiana; Fabian, Alexander; Boehm, Andreas; Wöhner, Ulrike; Kiyota, Naomi; Krüger, Maximilian; Bonomo, Pierluigi; Pinto, Monica; Nuyts, Sandra; Silva, Joaquim Castro; Stromberger, Carmen; Specenier, Pol; Tramacere, Francesco; Bushnak, Ayman; Perotti, Pietro; Plath, Michaela; Paderno, Alberto; Stempler, Noa; Kanellopoulou, Antonia; Singer, Susanne; Verdonck-de Leeuw, Irma M
肿瘤
肿瘤免疫
头颈癌
发表日期：2025
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Toxicities in long-term survivors of head and neck cancer-A multi-national cross-sectional analysis

头颈癌长期生存者的毒性反应——一项多国横断面分析

期刊:International Journal of Cancer
影响因子:4.7
doi:10.1002/ijc.70033
Taylor, Katherine J; Amdal, Cecilie D; Bjordal, Kristin; Astrup, Guro L; Herlofson, Bente B; Duprez, Fréderic; Gama, Ricardo R; Jacinto, Alexandre; Hammerlid, Eva; Scricciolo, Melissa; Jansen, Femke; Verdonck-de Leeuw, Irma M; Fanetti, Giuseppe; Guntinas-Lichius, Orlando; Inhestern, Johanna; Dragan, Tatiana; Fabian, Alexander; Boehm, Andreas; Wöhner, Ulrike; Kiyota, Naomi; Krüger, Maximilian; Bonomo, Pierluigi; Pinto, Monica; Nuyts, Sandra; Silva, Joaquim Castro; Stromberger, Carmen; Specenier, Pol; Tramacere, Francesco; Bushnak, Ayman; Perotti, Pietro; Plath, Michaela; Paderno, Alberto; Stempler, Noa; Kouri, Maria; Grégoire, Vincent; Tribius, Silke; Singer, Susanne
肿瘤
毒理研究
肿瘤免疫
头颈癌
发表日期：2025
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Beyond Treatment: Prevalence, Predictors, and Changes in Anxiety and Depression Among Parents of Childhood Cancer Survivors

治疗之外：儿童癌症幸存者父母焦虑和抑郁的患病率、预测因素和变化

期刊:Psycho-Oncology
影响因子:3.5
doi:10.1002/pon.70115
Kurz, Hannah; Paul, Verena; Nasse, Mona L; Krauth, Konstantin A; Kandels, Daniela; Rutkowski, Stefan; Escherich, Gabriele; Inhestern, Laura; Bergelt, Corinna
肿瘤
肿瘤免疫
神经科学
发表日期：2025
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Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study

应对罕见病患者的社会心理脆弱性：一项欧洲专家共识研究的行动呼吁

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-025-04017-3
Smits, Rosanne M; Aerts, Aukje; Angelov, Teodor; Bentele, Marissa; de Blaauw, Ivo; Dellenmark-Blom, Michaela; Duijts, Saskia F A; Fjermestad, Krister; Franscini, Monica; Grano, Caterina; Hendriks, Sigrid; Inhestern, Laura; Kenny, Thomas; von der Lippe, Charlotte; Oomen, Loes; Rake, Jan Peter; Rietman, Andre B; van Rooij, Iris A L M; Verhaak, Chris M; Voet, Nicoline B M; Walton, Holly; van Zelst-Stams, Wendy; Kwakkenbos, Linda
发表日期：2025
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Exploring burnout and uncertainty in healthcare professionals: a path analysis within the context of rare diseases

探讨医疗保健专业人员的职业倦怠和不确定性：罕见病背景下的路径分析

期刊:Frontiers in Public Health
影响因子:3.4
doi:10.3389/fpubh.2025.1417771
Zybarth, David; Inhestern, Laura; Bergelt, Corinna
发表日期：2025
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Factors Associated With Depression and Anxiety in People With Rare Diseases During COVID-19: A Cross-Sectional Study

COVID-19 期间罕见病患者抑郁和焦虑的相关因素：一项横断面研究

期刊:Depression and Anxiety
影响因子:3.3
doi:10.1155/da/9002779
Inhestern, Laura; Schwab de la O, Alba; Zybarth, David; Brandt, Maja; Otto, Ramona; Härter, Martin; Bergelt, Corinna
神经科学
发表日期：2025
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