Development of patient reported outcome measures assessing tumor pain intensity and tumor pain interference for individuals with neurofibromatosis type 1 and plexiform neurofibromas: qualitative findings
针对1型神经纤维瘤病和丛状神经纤维瘤患者,开发用于评估肿瘤疼痛强度和肿瘤疼痛干扰的患者报告结局指标:定性研究结果
期刊:Journal of Patient-Reported Outcomes
影响因子:2.9
doi:10.1186/s41687-025-00877-2
Al Ghriwati, Nour; Struemph, Kari; Martin, Staci; Little, Paige; Baker, Melissa; Levine, Jason; MacKenzie, Cynthia; Tonsgard, James; Schorry, Elizabeth K; Walsh, Karin S; Wolters, Pamela L