Evaluation of the Health-Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family-Based Intervention and an Online Intervention for Affected Families (CARE-FAM-NET)
基于一项随机对照试验的结果，评估患有罕见病的儿童和青少年的父母的健康相关生活质量和心理健康状况，该试验旨在研究针对受影响家庭的家庭干预和在线干预（CARE-FAM-NET）。
期刊:
影响因子:
doi:10.1111/famp.70041
Steinberg, Antonia; Boettcher, Johannes; Leidger, Anna; Muntau, Ania C; Denecke, Jonas; Kaiser, Nicole; Daubmann, Anne; Zapf, Antonia; Wegscheider, Karl; Ozga, Ann Kathrin; Suling, Anna Isabella; Bullinger, Monika; Quitmann, Julia; Dirmaier, Jörg; Witt, Stefanie; Rezvani, Farhad; Mundlos, Christine; Biehl, Lisa; Rassenhofer, Miriam; Fegert, Jörg M; Tutus, Dunja; Willms, Gerald; Zeidler, Jan; Pardey, Nicolas; von der Schulenburg, Johann-Matthias Graf; Wiegand-Grefe, Silke
