A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases
基于社区参与的罕见病患者教育材料（PEM）共同开发框架：一种可跨疾病推广的模式
期刊:International Journal of Environmental Research and Public Health
影响因子:
doi:10.3390/ijerph20020968
Falcão, Marta; Allocca, Mariateresa; Rodrigues, Ana Sofia; Granjo, Pedro; Francisco, Rita; Pascoal, Carlota; Rossi, Maria Grazia; Marques-da-Silva, Dorinda; Magrinho, Salvador C M; Jaeken, Jaak; Castro, Larisa Aragon; de Freitas, Cláudia; Videira, Paula A; de Andrés-Aguayo, Luísa; Dos Reis Ferreira, Vanessa
