日期 影响因子
日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:
–

Interstitial lung disease fatigue and breathlessness (ILD-FAB) programme: a multidisciplinary feasibility study

间质性肺病疲劳和呼吸困难（ILD-FAB）项目：一项多学科可行性研究

期刊:Bmj Open Respiratory Research
影响因子:3.4
doi:10.1136/bmjresp-2025-003652
Mandizha, Jessica; Davies, Rebecca; Crook, Charlotte; Duckworth, Anna; Gibbons, Michael; Lanario, Joseph W; Lines, Sarah; Moss, Jessica; Rivera-Ortega, Pilar; Stanel, Stefan; Taylor, Kate; Russell, Anne-Marie
特发性肺纤维化
发表日期：2026
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Patient-reported experience measure (PREM) for patients with interstitial lung disease (ILD): modification of a pre-existing measure

间质性肺病（ILD）患者报告体验测量（PREM）：对现有测量方法的改进

期刊:Bmj Open Respiratory Research
影响因子:
doi:10.1136/bmjresp-2025-003330
Mandizha, Jessica; Crook, Charlie; Lanario, Joseph; Davies, Rebecca; Duckworth, Anna; Almond, Howard P; Lines, Sarah; Gibbons, Michael; Scotton, Chris; Russell, Anne-Marie
特发性肺纤维化
发表日期：2026
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Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion

孤儿药的研发能否纳入更广泛的患者参与？公民陪审团将探讨这一前景广阔的理念

期刊:Health Expectations
影响因子:3.2
doi:10.1111/hex.70524
Frost, Julia; Mandizha, Jessica; van den Dungen, Chantal; Asare, Lauren; Pope, Catherine
发表日期：2025
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Widening Patient Engagement for Rare Disease Drug Trials: The Perspectives of Patients With Idiopathic Pulmonary Fibrosis on Participating in Clinical Drug Trials and Drug Trial Design

扩大患者参与罕见病药物试验：特发性肺纤维化患者对参与临床药物试验和药物试验设计的看法

期刊:Health Expectations
影响因子:3.2
doi:10.1111/hex.70260
Frost, Julia; Mandizha, Jessica; Jones, Steve; van den Dungen, Chantal; Asare, Lauren; Pope, Catherine
特发性肺纤维化
发表日期：2025
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Home Monitoring in Interstitial Lung Disease: Protocol for a Real-World Observational Study

间质性肺病居家监测：一项真实世界观察性研究方案

期刊:JMIR Research Protocols
影响因子:1.5
doi:10.2196/65339
Naqvi, Marium; Borton, Rebecca; Lines, Sarah; Dallas, Joanne; Mandizha, Jessica; Almond, Howard; Edwards, Colin; Adams, Wendy; Gibbons, Michael; Russell, Anne-Marie; West, Alex
特发性肺纤维化
发表日期：2025
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Supporting self-management for patients with Interstitial Lung Diseases: Utility and acceptability of digital devices

支持间质性肺病患者自我管理：数字设备的实用性和可接受性

期刊:PLOS Digital Health
影响因子:7.7
doi:10.1371/journal.pdig.0000318
Althobiani, Malik A; Shuttleworth, Rebecca; Conway, John; Dainton, Jonathan; Duckworth, Anna; Da Ponte, Ana Jorge; Mandizha, Jessica; Lanario, Joseph W; Gibbons, Michael A; Lines, Sarah; Scotton, Chris J; Hurst, John R; Porter, Joanna C; Russell, Anne-Marie
特发性肺纤维化
发表日期：2024
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How do patients and other members of the public engage with the orphan drug development? A narrative qualitative synthesis

患者和其他公众成员如何参与孤儿药的研发？一项叙事性定性综合研究

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-023-02682-w
Frost, Julia; Hall, Abi; Taylor, Emily; Lines, Sarah; Mandizha, Jessica; Pope, Catherine
发表日期：2023
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Patient perspectives on home-spirometry in interstitial lung disease: a qualitative co-designed study

间质性肺病患者对家庭肺功能测定的看法：一项定性共同设计研究

期刊:Bmj Open Respiratory Research
影响因子:3.4
doi:10.1136/bmjresp-2023-001837
Mandizha, Jessica; Lanario, Joseph W; Duckworth, Anna; Lines, Sarah; Paiva, Ana; Elworthy, Victoria; Muraleedharan, Veena; Da Ponte, Ana Jorge; Shuttleworth, Rebecca; Brown, Graham; Almond, Howard; Bond, Carole; Cosby, Maureen; Dallas, Joanne; Naqvi, Marium; Russell, Adam David; Berry, Alex; Gibbons, Michael; Scotton, Christopher J; Russell, Anne-Marie
特发性肺纤维化
发表日期：2023
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Health-Related Quality of Life (HRQoL) in Sarcoidosis: Diagnosis, Management, and Health Outcomes

结节病患者的健康相关生活质量（HRQoL）：诊断、治疗和健康结果

期刊:Diagnostics
影响因子:3.3
doi:10.3390/diagnostics11061089
Saketkoo, Lesley Ann; Russell, Anne-Marie; Jensen, Kelly; Mandizha, Jessica; Tavee, Jinny; Newton, Jacqui; Rivera, Frank; Howie, Mike; Reese, Rodney; Goodman, Melanie; Hart, Patricia; Strookappe, Bert; De Vries, Jolanda; Rosenbach, Misha; Scholand, Mary Beth; Lammi, Mathew R; Elfferich, Marjon; Lower, Elyse; Baughman, Robert P; Sweiss, Nadera; Judson, Marc A; Drent, Marjolein
发表日期：2021
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