Development and validation of a quality of life measurement scale specific to hereditary hemorrhagic telangiectasia: the QoL-HHT
针对遗传性出血性毛细血管扩张症患者,开发并验证了一种生活质量测量量表:QoL-HHT。
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-022-02426-2
Le, Thi Thao Truc; Martinent, Guillaume; Dupuis-Girod, Sophie; Parrot, Antoine; Contis, Anne; Riviere, Sophie; Chinet, Thierry; Grobost, Vincent; Espitia, Olivier; Dussardier-Gilbert, Brigitte; Alric, Laurent; Armengol, Guillaume; Maillard, Hélène; Leguy-Seguin, Vanessa; Leroy, Sylvie; Rondeau-Lutz, Murielle; Lavigne, Christian; Mohamed, Shirine; Chaussavoine, Laurent; Magro, Pascal; Seguier, Julie; Kerjouan, Mallorie; Fourdrinoy, Sylvie