Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers
与庞贝氏症共存:一项针对儿童、青少年及其照护者的定性访谈研究结果
期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-024-03368-7
Truninger, Moritz Ilan; Werner, Helene; Landolt, Markus Andreas; Hahn, Andreas; Hennermann, Julia B; Lagler, Florian B; Möslinger, Dorothea; Pfrimmer, Charlotte; Rohrbach, Marianne; Huemer, Martina