日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

The PompeQoL questionnaire: Development and validation of a new measure for children and adolescents with Pompe disease

庞贝病生活质量问卷:针对庞贝病患儿和青少年的一项新测量工具的开发和验证

Truninger, Moritz Ilan; Werner, Helene; Landolt, Markus Andreas; Hahn, Andreas; Hennermann, Julia B; Lagler, Florian B; Möslinger, Dorothea; Pfrimmer, Charlotte; Rohrbach, Marianne; Huemer, Martina

Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers

与庞贝氏症共存:一项针对儿童、青少年及其照护者的定性访谈研究结果

Truninger, Moritz Ilan; Werner, Helene; Landolt, Markus Andreas; Hahn, Andreas; Hennermann, Julia B; Lagler, Florian B; Möslinger, Dorothea; Pfrimmer, Charlotte; Rohrbach, Marianne; Huemer, Martina