日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Long-term impact of elexacaftor/tezacaftor/ivacaftor on small and large airways in people with cystic fibrosis aged ≥6 years: 24-month real-world evidence from the German Cystic Fibrosis Registry

elexacaftor/tezacaftor/ivacaftor 对 ≥6 岁囊性纤维化患者大小气道的长期影响:来自德国囊性纤维化注册研究的 24 个月真实世界证据

Dillenhöfer, Stefanie; Schütz, Katharina; Burkhart, Manuel; Ellemunter, Helmut; Kappler, Matthias; Sieber, Sarah; Naehrlich, Lutz; Brinkmann, Folke; Sutharsan, Sivagurunathan

Expanding Cystic Fibrosis Registries to the Rest of the World

将囊性纤维化登记范围扩大到世界其他地区

Naehrlich, Lutz

Reduction of systemic inflammation by elexacaftor/tezacaftor/ivacaftor correlates with lung function improvement in cystic fibrosis

elexacaftor/tezacaftor/ivacaftor 降低全身炎症与囊性纤维化患者肺功能改善相关

Halle, Olga; Graeber, Simon Y; Kontsendorn, Julia; Kessemeier, Claudia; Falke, Jan-Niklas; Schwabe, Jannik; Schütz, Katharina; Pallenberg, Sophia T; Dalferth, Rebecca; Grychtol, Ruth; Ringshausen, Felix C; Stahl, Mirjam; Thee, Stephanie; Roehmel, Jobst F; Syunyaeva, Zulfiya; Duerr, Julia; Chung, Jaehi; Hirtz, Stephanie; Uselmann, Tatjana; Kühbandner, Iris; Rückes-Nilges, Claudia; Bagheri-Pothoff, Azadeh; Barth, Sandra; Schaub, Bianca; Brinkmann, Folke; Weber, Stefanie; van Koningsbruggen-Rietschel, Silke; Abdo, Mustafa; Weckmann, Markus; Widder, Stefanie; Hansen, Gesine; Tümmler, Burkhard; Sommerburg, Olaf; Naehrlich, Lutz; Mall, Marcus A; Dittrich, Anna-Maria

Optimizing Patient Registries for Regulatory Decision Making - Key Learnings From an HMA/EMA Multistakeholder Workshop

优化患者登记系统以辅助监管决策——HMA/EMA多方利益相关者研讨会的主要经验总结

Plueschke, Kelly; Jonker, Carla; Kankanen, Hanna; Vetter, Thorsten; Sepodes, Bruno; Naehrlich, Lutz; Hillert, Jan; Crane, Gracy; Straus, Sabine; Foggi, Paolo; Martin, Simona; Kyriakopoulou, Christina; Mol, Peter; Day, Francesca; Breen, Kieran; Bennett, Neil; de Lemus Belmonte, Mencia; Bennett, Simon; Verpillat, Patrice; Roes, Kit C B; Cochino, Ana; Schaefer, Franz; Hernández-Rivas, Jesús María; McGettigan, Patricia; Arlett, Peter

Data accuracy in the European Cystic Fibrosis Society Patient Registry: results of an on-site data validation project

欧洲囊性纤维化协会患者登记库的数据准确性:现场数据验证项目的结果

Lutz, Naehrlich; Alice, Fox; Marko, Krasnyk; Nadine, Wollscheid; Mayor, Silvia Lorca; Anna, Zolin; Vibha, Prasad

Progress of personalized medicine of cystic fibrosis in the times of efficient CFTR modulators

在高效CFTR调节剂时代,囊性纤维化个性化医疗取得了进展

Tümmler, Burkhard; Pallenberg, Sophia Theres; Dittrich, Anna-Maria; Graeber, Simon Y; Naehrlich, Lutz; Sommerburg, Olaf; Mall, Marcus A

Success of the German Cystic Fibrosis Registry

德国囊性纤维化登记处的成功

Naehrlich, Lutz; Burkhart, Manuel

Effects of azithromycin in young adults with cystic fibrosis: a protocol for emulating a published randomised controlled trial using registry data

阿奇霉素对年轻囊性纤维化患者的影响:一项利用注册数据模拟已发表的随机对照试验的方案

Granger, Emily; Todd, Jonathan; Charman, Susan Christine; Cromwell, Elizabeth; Davies, Gwyneth; Frost, Freddy; Gifford, Alex; Huang, Bin; Hamblett, Nicole Mayer; Naehrlich, Lutz; Ostrenga, Josh; Stanojevic, Sanja; Szczesniak, Rhonda; Keogh, Ruth

Cystic fibrosis in Europe: improved lung function and longevity - reasons for cautious optimism, but challenges remain

欧洲囊性纤维化:肺功能和寿命有所改善——谨慎乐观的理由,但挑战依然存在。

Kerem, Eitan; Orenti, Annalisa; Adamoli, Arianna; Hatziagorou, Elpis; Naehrlich, Lutz; Sermet-Gaudelus, Isabelle

Impact of elexacaftor/tezacaftor/ivacaftor therapy on lung clearance index and magnetic resonance imaging in children with cystic fibrosis and one or two F508del alleles

elexacaftor/tezacaftor/ivacaftor 治疗对患有囊性纤维化且携带一个或两个 F508del 等位基因的儿童的肺清除指数和磁共振成像的影响

Stahl, Mirjam; Dohna, Martha; Graeber, Simon Y; Sommerburg, Olaf; Renz, Diane M; Pallenberg, Sophia T; Voskrebenzev, Andreas; Schütz, Katharina; Hansen, Gesine; Doellinger, Felix; Steinke, Eva; Thee, Stephanie; Röhmel, Jobst; Barth, Sandra; Rückes-Nilges, Claudia; Berges, Julian; Hämmerling, Susanne; Wielpütz, Mark O; Naehrlich, Lutz; Vogel-Claussen, Jens; Tümmler, Burkhard; Mall, Marcus A; Dittrich, Anna-Maria