日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Psychometric Properties and Meaningful Change Thresholds of the Vitiligo Area Scoring Index.

白癜风面积评分指数的心理测量特性和有意义的变化阈值

Ezzedine Khaled, Soliman Ahmed M, Camp Heidi S, Ladd Mary Kate, Pokrzywinski Robin, Coyne Karin S, Sen Rohini, Schlosser Bethanee J, Bae Jung Min, Hamzavi Iltefat

The Lived Experience of Patients Diagnosed with Vitiligo and a Preliminary Conceptual Disease Model: Insights from Patients, Patient Advocates, and Clinicians

白癜风患者的亲身经历及初步概念疾病模型:来自患者、患者权益倡导者和临床医生的见解

Ezzedine, Khaled; Soliman, Ahmed M; Ladd, Mary Kathleen; Patterson, Stavonnie; Sen, Rohini; Ofori, Sarah; Coyne, Karin S; Pokrzywinski, Robin

"My dream is to not have to be on a diet": a qualitative study on burdens of classical homocystinuria (HCU) from the patient perspective

“我的梦想是不必节食”:一项从患者角度探讨经典型同型半胱氨酸尿症(HCU)负担的定性研究

Pokrzywinski, Robin; Bartke, Danaé; Clucas, Claudine; Machuzak, Kathy; Pinto, Lionel

Qualitative assessment of the suitability of the Dysphagia Symptom Questionnaire to monitor dysphagia in children aged 7-10 years with eosinophilic esophagitis

对吞咽困难症状问卷在监测7-10岁嗜酸性食管炎患儿吞咽困难方面的适用性进行定性评估

Pokrzywinski, Robin M; Goodwin, Bridgett; Dellon, Evan S; Kodroff, Ellyn; Brooks, Anne; Bailey, Adam; Williams, James; Desai, Nirav K

Qualitative Interviews to Assess the Content Validity and Usability of the Electronic Raynaud Diary in Patients with Systemic Sclerosis

通过定性访谈评估系统性硬化症患者电子雷诺日记的内容效度和可用性

Domsic, Robyn T; Pokrzywinski, Robin; Stassek, Larissa; Benton, Wade W; Vampola, Christa-Lynn; Furst, Daniel E; Chung, Lorinda; Steen, Virginia; Mayes, Maureen D; Shah, Ami A; Molitor, Jerry A; Oliver, Kelly; Nagaraja, Vivek; Khanna, Dinesh

Conversations and Reactions Around Severe Hypoglycemia (CRASH) Study: Results From People With Diabetes and Caregivers in the United States

关于严重低血糖症的对话和反应(CRASH)研究:来自美国糖尿病患者及其照护者的结果

Snoek, Frank J; Spaepen, Erik; Nambu, Barbara A; Child, Christopher J; Bajpai, Sanjay; Balantac, Zaneta; Bushnell, Donald M; Pokrzywinski, Robin; Mitchell, Beth D

Measuring health-related quality of life in patients with rare disease

测量罕见病患者的健康相关生活质量

Lenderking, William R; Anatchkova, Milena; Pokrzywinski, Robin; Skalicky, Anne; Martin, Mona L; Gelhorn, Heather

Health-Related Quality of Life Improvements in Patients With Endometriosis Treated With Elagolix

接受艾拉戈利治疗的子宫内膜异位症患者的健康相关生活质量改善

Taylor, Hugh S; Soliman, Ahmed M; Johns, Beverly; Pokrzywinski, Robin M; Snabes, Michael; Coyne, Karin S

Impact of Respiratory Syncytial Virus-Confirmed Hospitalizations on Caregivers of US Preterm Infants

呼吸道合胞病毒确诊住院对美国早产儿照护者的影响

Pokrzywinski, Robin M; Swett, Laura L; Pannaraj, Pia S; Yi, Jumi; Pavilack, Melissa S; Kumar, Veena R; McLaurin, Kimmie K

Qualitative interviews to identify burden of illness, impacts and costs associated with surgical site infections

通过定性访谈来确定手术部位感染的疾病负担、影响和相关成本

Gelhorn, Heather L; Anand, Savita B; Parvizi, Javad; Morrison, Tiffany; Yu, Holly; Pokrzywinski, Robin; Al-Jassar, Gemma; Chen, Antonia F