日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis

接受布罗索单抗治疗的X连锁低磷血症青少年在骨骼生长末期的生活体验:一项混合方法分析

Saraff, Vrinda; Sancho, Pedro Arango; Bacchetta, Justine; Boot, Annemieke M; Burren, Christine; Chinoy, Amish; Dharmaraj, Poonam; Llorente, Maria Amelia Gómez; Rodríguez, Juan David González; Gueorguieva, Iva; Davies, Elin Haf; Hayes, Wesley; Komarzynski, Sandra; Duro, Héctor Ríos; Rylands, Angela J; Sandilands, Kerry; Williams, Angela; Hardie, Emily; Ishii, Haruka; Schnabel, Dirk; Selveindran, Santhani M; Linglart, Agnès

Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth

青少年罹患X连锁低磷血症(XLH)的经历:一项混合方法分析,研究对象为骨骼生长结束后继续和停止布罗索单抗治疗的患者。

Saraff, Vrinda; Arango-Sancho, Pedro; Bacchetta, Justine; Boot, Annemieke M; Burren, Christine P; Chinoy, Amish; Dharmaraj, Poonam; Gómez Llorente, Maria Amelia; González Rodríguez, Juan David; Gueorguieva, Iva; Hayes, Wesley; Schnabel, Dirk; Duro, Héctor Ríos; Davies, Elin Haf; Komarzynski, Sandra; Rylands, Angela J; Sandilands, Kerry; Ishii, Haruka; Williams, Angela; Selveindran, Santhani; Barlassina, Adele; Bowden, Annabel; Linglart, Agnès

Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study

非专业照护者对罕见病成年患者健康相关生活质量和生产力负担的影响:一项真实世界研究

Johnson, Ben; Gibson, Gregor; Baskerville, Daniel; Castellano, Giorgio; de Courcy, Jonathan; Iqbal, Halima; Piercy, James; Williams, Angela; Pinedo-Villanueva, Rafael; Rylands, Angela

Quantitative risk assessment of radiocesium associated with Japanese foods imported into the United Kingdom

对进口到英国的日本食品中放射性铯进行定量风险评估

Adkin, Amie; Rylands, Kay; Goodman, Jessica; Oatway, Wayne; Uy, Frederique M; Edge, Joanne; Potter, Claire

Impact of stopping burosumab treatment at the end of skeletal growth in adolescents with X-linked hypophosphatemia (XLH)

在患有 X 连锁低磷血症 (XLH) 的青少年骨骼生长结束时停止布罗索单抗治疗的影响

Jarvis, Charlotte; Ramakrishnan, Renuka; Dharmaraj, Poonam; Mushtaq, Talat; Gupta, Sanjay; Williams, Angela; Rylands, Angela J; Barham, Helen; Nixon, Annabel; Uday, Suma

Health-related quality of life in French pediatric patients with X-linked hypophosphatemia: real-world data from the International XLH Registry

法国患有X连锁低磷血症的儿科患者的健康相关生活质量:来自国际XLH注册中心的真实世界数据

Linglart, Agnès; Amouroux, Cyril; Gueorguieva, Iva; Harambat, Jerome; Salles, Jean-Pierre; Ertl, Diana-Alexandra; Sandilands, Kerry; Rylands, Angela; Williams, Angela; Ishii, Haruka; Bowden, Annabel; Varni, James W; Bacchetta, Justine

Correlated shapeshifting and configurational isomerization

相关形状转变和构型异构化

Hussein, Burhan A; Maturi, William; Rylands, Mary Kate; Bismillah, Aisha N; Wen, Yuzhen; Aguilar, Juan A; Ayub, Rabia; Rankine, Conor D; McGonigal, Paul R

Rocatinlimab Improves Patient-Reported Outcomes in Adults with Moderate-to-Severe Atopic Dermatitis: Results from a Double-Blind Placebo-Controlled Phase 2b Study

罗卡汀利单抗改善中重度特应性皮炎成人患者的自述结局:一项双盲安慰剂对照 2b 期研究的结果

Gooderham, Melinda; Guttman-Yassky, Emma; Igawa, Ken; Kabashima, Kenji; Esfandiari, Ehsanollah; Rylands, Angela J; Williams, Angela; Nixon, Annabel; Dent, Jennifer E; Simpson, Eric

Phylogeography, taxonomy, and conservation of the endangered brown howler monkey, Alouatta guariba (Primates, Atelidae), of the Atlantic Forest

大西洋森林濒危棕色吼猴(Alouatta guariba,灵长目,长尾猴科)的系统地理学、分类学和保护

Oklander, Luciana I; Fernández, Gabriela P; Machado, Stela; Caputo, Mariela; Hirano, Zelinda M B; Rylands, Anthony B; Neves, Leonardo G; Mendes, Sérgio L; Pacca, Luciana G; de Melo, Fabiano R; Mourthé, Italo; Freitas, Thales R O; Corach, Daniel; Jerusalinsky, Leandro; Bonatto, Sandro L

Assessing numeracy and medication calculations within undergraduate nursing education: A qualitative study

评估本科护理教育中的数学能力和药物计算能力:一项定性研究

Minty-Walker, Christine; Wilson, Nathan J; Rylands, Leanne; Pettigrew, Jim; Hunt, Leanne