Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth
青少年罹患X连锁低磷血症（XLH）的经历：一项混合方法分析，研究对象为骨骼生长结束后继续和停止布罗索单抗治疗的患者。
期刊:Orphanet Journal of Rare Diseases
影响因子:
doi:10.1186/s13023-026-04244-2
Saraff, Vrinda; Arango-Sancho, Pedro; Bacchetta, Justine; Boot, Annemieke M; Burren, Christine P; Chinoy, Amish; Dharmaraj, Poonam; Gómez Llorente, Maria Amelia; González Rodríguez, Juan David; Gueorguieva, Iva; Hayes, Wesley; Schnabel, Dirk; Duro, Héctor Ríos; Davies, Elin Haf; Komarzynski, Sandra; Rylands, Angela J; Sandilands, Kerry; Ishii, Haruka; Williams, Angela; Selveindran, Santhani; Barlassina, Adele; Bowden, Annabel; Linglart, Agnès
