日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Clinical and genetic aspects of Bardet-Biedl syndrome in adults in Norway

挪威成年人巴德-比德尔综合征的临床和遗传学特征

Rustad, Cecilie Fremstad; Bragadottir, Ragnheidur; Tveten, Kristian; Nordgarden, Hilde; Miller, Jeanette Ullmann; Åsten, Pamela Marika; Vasconcelos, Gisela; Kulseth, Mari Ann; Holla, Øystein Lunde; Olsen, Hanne Gro; von der Lippe, Charlotte; Sigurdardottir, Solrun

Gastrointestinal symptoms in adults with Fabry disease and their associations with physical and mental health

法布里病成人患者的胃肠道症状及其与身心健康的关系

Weedon-Fekjær, Mina Susanne; Pihlstrøm, Hege Kampen; Weedon-Fekjær, Harald; Berentsen, Birgitte; Hatlebakk, Jan Gunnar; Bjerkely, Birgitte; Solberg, Olga Karin; Heimdal, Ketil Riddervold; Ørstavik, Kristin; Jenssen, Trond G; Sigurdardottir, Solrun

Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway

挪威一项关于巴德-比德尔综合征成年患者的医疗保健需求、医疗服务利用情况和健康状况结果的横断面研究

Rustad, Cecilie Fremstad; Bragadottir, Ragnheidur; Nordgarden, Hilde; Miller, Jeanette Ullmann; Weedon-Fekjær, Mina Susanne; Arfa, Shahrzad; Åsten, Pamela Marika; Tveten, Kristian; von der Lippe, Charlotte; Sigurdardottir, Solrun

'In the dark': parents' lifelong commitment to supporting children with Bardet-Biedl syndrome

“身处黑暗之中”:父母们终生致力于支持患有巴德-比德尔综合征的儿童

Ullmann Miller, Jeanette; Fauske, Lena; Sigurdardottir, Solrun; Arfa, Shahrzad; von der Lippe, Charlotte

Differences of sex development and surgical decisions: focus group interviews with health care professionals in Norway

性发育差异与手术决策:挪威医护人员焦点小组访谈

Mediå, Line Merete; Fauske, Lena; Sigurdardottir, Solrun; Billaud Feragen, Kristin J; Waehre, Anne

Effect of an Individually Tailored and Home-Based Intervention in the Chronic Phase of Traumatic Brain Injury: A Randomized Clinical Trial

针对创伤性脑损伤慢性期患者,个体化居家干预的效果:一项随机临床试验

Borgen, Ida M H; Løvstad, Marianne; Hauger, Solveig L; Forslund, Marit V; Kleffelgård, Ingerid; Andelic, Nada; Sveen, Unni; Søberg, Helene L; Sigurdardottir, Solrun; Winter, Laraine; Lindstad, Marte Ørud; Brunborg, Cathrine; Røe, Cecilie

Understanding sexual health concerns among adolescents and young adults with differences of sex development: a qualitative study

了解性发育差异青少年和青年人的性健康问题:一项定性研究

Mediå, Line Merete; Sigurdardottir, Solrun; Fauske, Lena; Waehre, Anne

Self-reported symptoms of everyday executive dysfunction, daytime sleepiness, and fatigue and health status among adults with congenital aniridia: a descriptive study

先天性无虹膜症成人患者日常执行功能障碍、日间嗜睡和疲劳等自我报告症状及健康状况:一项描述性研究

Sigurdardottir, Solrun; von der Lippe, Charlotte; Media, Line; Ullmann Miller, Jeanette; Landsend, Erlend Christoffer Sommer

APOE-ε4 Is Associated With Reduced Verbal Memory Performance and Higher Emotional, Cognitive, and Everyday Executive Function Symptoms Two Months After Mild Traumatic Brain Injury.

轻度脑外伤后两个月,APOE-α4 与言语记忆力下降以及情绪、认知和日常执行功能症状加重有关

Hellstrøm Torgeir, Andelic Nada, Holthe Øyvor Øistensen, Helseth Eirik, Server Andres, Eiklid Kristin, Sigurdardottir Solrun

'It was Supposed to be a Secret': a study of disclosure and stigma as experienced by adults with differences of sex development

“这本该是个秘密”:一项关于性发育差异成年人披露自身性取向及遭受污名化的研究

Mediå, Line Merete; Fauske, Lena; Sigurdardottir, Solrun; Feragen, Kristin J Billaud; Heggeli, Charlotte; Wæhre, Anne