日期 影响因子
日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:
–

Caregiver burden associated with caring for individuals with tuberous sclerosis complex-associated seizures: A descriptive, non-interventional survey in Sweden

瑞典一项描述性非干预调查研究了照顾患有结节性硬化症相关癫痫患者的照护者负担。

期刊:Epilepsy and Behavior Reports
影响因子:1.5
doi:10.1016/j.ebr.2024.100737
Lo, Siu Hing; Skrobanski, Hanna; Harrison, Miranda; Siddiqui, Jamshaed; Bowditch, Sally
癫痫
神经科学
发表日期：2025
文献求助 收藏

A qualitative study to explore the burden of disease in activated phosphoinositide 3-kinase delta syndrome (APDS)

一项旨在探讨活化磷脂酰肌醇3-激酶δ综合征（APDS）疾病负担的定性研究

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-024-03215-9
Hitchcock, Ian; Skrobanski, Hanna; Matter, Elina; Munro, Ewen; Whalen, John; Nolthenius, Joanne Tutein; Crocker-Buque, Alex; Harrington, Amanda; Vandenberghe, Delphine; Acaster, Sarah; Williams, Kate
信号转导
发表日期：2024
文献求助 收藏

Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study

EQ-5D-5L量表在评估输血依赖型β-地中海贫血患者健康相关生活质量方面的适用性：一项混合方法研究

期刊:Health and Quality of Life Outcomes
影响因子:3.4
doi:10.1186/s12955-024-02265-8
Boateng-Kuffour, Adriana; Skrobanski, Hanna; Drahos, Jennifer; Kohli, Puja; Forster, Katie; Acaster, Sarah; Pakbaz, Zahra; Li, Nanxin; Williams, Kate
代谢
贫血
发表日期：2024
文献求助 收藏

Shared decision-making and the caregiver experience in tuberous sclerosis complex: results from a UK survey

共同决策与结节性硬化症患者照护者体验：一项英国调查的结果

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-023-02677-7
Skrobanski, Hanna; Vyas, Kishan; Bowditch, Sally; Hubig, Lena; Dziadulewicz, Edward; Fish, Louise; Takhar, Pooja; Lo, Siu Hing
发表日期：2023
文献求助 收藏

The Burden of Caring for Individuals with Tuberous Sclerosis Complex (TSC) Who Experience Epileptic Seizures: A Descriptive UK Survey

照顾患有结节性硬化症 (TSC) 并伴有癫痫发作的患者的负担：一项英国描述性调查

期刊:Pharmacoeconomics-Open
影响因子:2.1
doi:10.1007/s41669-023-00387-1
Skrobanski, Hanna; Vyas, Kishan; Bowditch, Sally; Hubig, Lena; Dziadulewicz, Edward; Fish, Louise; Takhar, Pooja; Lo, Siu Hing
神经科学
癫痫
发表日期：2023
文献求助 收藏

Caregivers' Perspectives on the Impact of Cannabidiol (CBD) Treatment for Dravet and Lennox-Gastaut Syndromes: A Multinational Qualitative Study

照护者对大麻二酚 (CBD) 治疗 Dravet 综合征和 Lennox-Gastaut 综合征影响的看法：一项多国定性研究

期刊:Journal of Child Neurology
影响因子:1.6
doi:10.1177/08830738231185241
Marshall, Jade; Skrobanski, Hanna; Moore-Ramdin, Lisa; Kornalska, Klaudia; Swinburn, Paul; Bowditch, Sally
发表日期：2023
文献求助 收藏

Symptoms and impacts of aromatic L-amino acid decarboxylase (AADC) deficiency among individuals with different levels of motor function

芳香族L-氨基酸脱羧酶（AADC）缺乏症对不同运动功能水平个体的影响

期刊:Orphanet Journal of Rare Diseases
影响因子:3.5
doi:10.1186/s13023-022-02274-0
Williams, Kate; Skrobanski, Hanna; Buesch, Katharina; Acaster, Sarah
发表日期：2022
文献求助 收藏

Patient and Caregiver Health State Utilities in Tuberous Sclerosis Complex

结节性硬化症患者及照护者健康状态效用

期刊:Pharmacoeconomics-Open
影响因子:2.1
doi:10.1007/s41669-021-00296-1
Lo, Siu Hing; Marshall, Jade; Skrobanski, Hanna; Lloyd, Andrew
发表日期：2022
文献求助 收藏

Demographic and psychological predictors of community pharmacists' cancer-related conversations with patients: a cross-sectional analysis and survey study

社区药剂师与患者进行癌症相关对话的人口统计学和心理学预测因素：一项横断面分析和调查研究

期刊:BMC Health Services Research
影响因子:
doi:10.1186/s12913-022-07587-1
Kerrison, Robert S; Robinson, Anna; Skrobanski, Hanna; Kayal, Ghalia; Kaushal, Aradhna; Ide-Walters, Charlotte; Todd, Adam; Husband, Andrew; Lakhani, Shivali; Alter, Marsha; von Wagner, Christian; MacDonald, Lindsay
肿瘤
肿瘤免疫
发表日期：2022
文献求助 收藏

Correction to: Demographic and psychological predictors of community pharmacists' cancer-related conversations with patients: a cross-sectional analysis and survey study

更正：社区药剂师与患者进行癌症相关对话的人口统计学和心理学预测因素：一项横断面分析和调查研究

期刊:BMC Health Services Research
影响因子:
doi:10.1186/s12913-022-07746-4
Kerrison, Robert S; Robinson, Anna; Skrobanski, Hanna; Kayal, Ghalia; Kaushal, Aradhna; Ide-Walters, Charlotte; Todd, Adam; Husband, Andrew; Lakhani, Shivali; Alter, Marsha; von Wagner, Christian; MacDonald, Lindsay
肿瘤
肿瘤免疫
发表日期：2022
文献求助 收藏