Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs
照顾通过新生儿筛查确诊的先天性肾上腺皮质增生症患儿：父母的健康相关生活质量、应对模式和需求
期刊:International Journal of Environmental Research and Public Health
影响因子:
doi:10.3390/ijerph20054493
Rautmann, Laura; Witt, Stefanie; Theiding, Christoph; Odenwald, Birgit; Nennstiel-Ratzel, Uta; Dörr, Helmuth-Günther; Quitmann, Julia Hannah
