日期:
2020 年 — 2026 年
2020
2021
2022
2023
2024
2025
2026
影响因子:

Quality of Life in Patients With Variant Syndromes of Autoimmune Liver Diseases-A Cross-Sectional Multicentre Study

自身免疫性肝病变异综合征患者的生活质量——一项横断面多中心研究

Uhlenbusch, Natalie; Snijders, Romée J A L M; Mund, Meike; Janik, Maciej K; Milkiewicz, Piotr; Löwe, Bernd; Kroll, Claudia; Raszeja-Wyszomirska, Joanna; Gerussi, Alessio; Bolis, Francesca; Cristoferi, Laura; Invernizzi, Pietro; Kovats, Patricia; Papp, Mária; Grønbæk, Lisbet; Grønbæk, Henning; Tjwa, Eric T T L; Aamann, Luise; Ytting, Henriette; Ronca, Vincenzo; Olsen, Kathryn; Oo, Ye H; van der Meer, Adriaan J; Madaleno, João; Canhão, Bernardo; Engel, Bastian; Campos-Murguia, Alejandro; Taubert, Richard; Koc, Özgür M; Kramer, Matthijs; Willemse, José A; Lohse, Ansgar W; Drenth, Joost P H; Gevers, Tom J G; Schramm, Christoph

Optimizing recruitment in rare disease research: a cross-sectional online study evaluating sampling strategies for hard-to-reach populations

优化罕见病研究的招募:一项评估难以接触人群抽样策略的横断面在线研究

Baffour, Shalice; Löwe, Bernd; Braun, Annika; Uhlenbusch, Natalie

Non-Adherence to Standard Therapy in Autoimmune Hepatitis: Impact of Steroid Use and Over-the-Counter Medications

自身免疫性肝炎患者不遵医嘱接受标准治疗:类固醇使用和非处方药的影响

Wunsch, Ewa; Krause, Linda; Lohse, Ansgar Wilhelm; Schramm, Christoph; Löwe, Bernd; Uhlenbusch, Natalie; Snijders, Romée; Willemse, José; Janik, Maciej; Gevers, Tom J G; Milkiewicz, Piotr

Peer Support in Chronic Conditions from the Peer Supporters' Perspective: A Systematic Review

从同伴支持者的角度看慢性病同伴支持:一项系统性综述

Braun, Annika; Löwe, Bernd; Uhlenbusch, Natalie

Confidence in treatment is contributing to quality of life in autoimmune liver diseases. The results of ERN RARE-LIVER online survey

对治疗的信心有助于提高自身免疫性肝病患者的生活质量。ERN RARE-LIVER 在线调查的结果显示

Wunsch, Ewa; Krause, Linda; Gevers, Tom Jg; Schramm, Christoph; Janik, Maciej K; Krawczyk, Marcin; Willemse, José; Uhlenbusch, Natalie; Löwe, Bernd; Lohse, Ansgar Wilhelm; Milkiewicz, Piotr

Improving quality of life in patients with rare autoimmune liver diseases by structured peer-delivered support (Q.RARE.LI): study protocol for a transnational effectiveness-implementation hybrid trial

通过结构化的同伴互助支持改善罕见自身免疫性肝病患者的生活质量(Q.RARE.LI):一项跨国效果-实施混合试验的研究方案

Uhlenbusch, Natalie; Bal, Arpinder; Balogh, Boglárka; Braun, Annika; Geerts, Anja; Hirschfield, Gideon; Janik, Maciej K; Lohse, Ansgar W; Milkiewicz, Piotr; Papp, Mária; Poppe, Carine; Schramm, Christoph; Löwe, Bernd

Psychological distress of adult patients consulting a center for rare and undiagnosed diseases: a cross-sectional study

就诊于罕见病和未确诊疾病中心的成年患者的心理困扰:一项横断面研究

Mund, Meike; Uhlenbusch, Natalie; Rillig, Franziska; Weiler-Normann, Christina; Herget, Theresia; Kubisch, Christian; Löwe, Bernd; Schramm, Christoph

Somatic symptom disorder: a scoping review on the empirical evidence of a new diagnosis

躯体症状障碍:一项关于新诊断的实证证据的范围界定综述

Löwe, Bernd; Levenson, James; Depping, Miriam; Hüsing, Paul; Kohlmann, Sebastian; Lehmann, Marco; Shedden-Mora, Meike; Toussaint, Anne; Uhlenbusch, Natalie; Weigel, Angelika

Efficacy of a Brief, Peer-Delivered Self-management Intervention for Patients With Rare Chronic Diseases: A Randomized Clinical Trial

一项针对罕见慢性病患者的简短同伴互助式自我管理干预的疗效:一项随机临床试验

Depping, Miriam K; Uhlenbusch, Natalie; Härter, Martin; Schramm, Christoph; Löwe, Bernd

Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study

罕见慢性病患者的支持性护理需求:一项多方法横断面研究

Depping, Miram K; Uhlenbusch, Natalie; von Kodolitsch, Yskert; Klose, Hans F E; Mautner, Victor-Felix; Löwe, Bernd