Patient passports for rare diseases: results of a pilot study
罕见病患者护照：一项试点研究的结果
期刊:European Journal of Human Genetics
影响因子:4.6
doi:10.1038/s41431-025-01930-w
Balfour, Jo; Morrison, Vaila; Seed, Lydia; Clymer, Joseph; Warnants, Emma; Lampkin, Abigail; Leiter, Sarah M; Chandratillake, Gemma
